Tawni: I have traveled all over the world since I was a kid, I have lived on 3 different continents. I know exactly how you feel here! I think the central element of pleasure when it comes to travel is SLEEP. Get as much sleep as you can before the trip starts and get as much as you can when the trip goes on! Sit down whenever you can, especially if you're in a super long line to get in somewhere. You will be having the seizures you have because you have changed your normal procedure (homeostasis). Try as much as you can to rest. Good luck and regards, Jake

Thanks Jake. I just traveled home from Europe. Lots of walking, in very hot weather. Great suggestion about sleep. Six others of my family were with us - 2 of my girls are pregnant, which definitely helped the speed of the days to be at a little slower pace.
Adjusting to the different time zones, and long travel times are tough.

Traveling was always relaxing for me, even for business. It meant that I had to leave all those things back at home that I kept saying I had to get done asap. In actuality, they needed to be done, just not as fast as I'd like them to be completed. I guess I'm my own worst enemy/critic

Ive never gotten one while traveling. If youre sensitive to the heat, try to limit it. Try to sleep earlier to get enough sleep when it comes to time change. Where are you planning to go?

Twani2, great discussion you started here!
Earlier this year, my husband and I traveled to Uruguay for a holiday - I currently live in São Paulo, Brazil - so same time zone and just 2 and a half hours of flight. This was my first international trip after a status epilepticus I had in December 2024. My husband and I had a great time in Uruguay and I had no seizures!!!
Here are my key learnings for safe travelling with epilepsy:
• Medications: I prepared a small travel pharmacy — not only my prescribed neurological medications, but also remedies for common issues like indigestion, headaches and colds. I also brought a letter from my doctor with details about my epilepsy and prescriptions, and verified that all my medications, including my CBD oil, were accepted in Uruguay. All this gave me real peace of mind. It also proved to be a smart move when my husband caught a cold in the last days of the trip, since medications in Uruguay are significantly more expensive than in Brazil.
• Medical facilities: Before travelling, I looked into neurology services in Montevideo. Knowing that good options were available — just in case — was truly reassuring.
• Accommodations: Good sleep is essential for us with epilepsy, so I chose our accommodations carefully. For the first week, we chose a hotel, and then moved to an Airbnb. Even so, I learned a new lesson: our Airbnb bedroom was right in front of an active construction site. Luckily, I had packed earplugs. Next time, checking whether the bedroom faces the street will definitely be on my list.
• A smooth and flexible agenda: Unlike trips taken before, my husband and I had no fixed to-do list of places to visit. Each morning, we decided what to do based on how we both felt. After 10 seizure-free days, I felt confident enough to take two short day trips outside Montevideo.
Getting back home after three weeks away can itself be a stressor, so I've made a conscious effort to ease back in gently:
• One bag at a time: instead of facing all the unpacking at once, my husband and I agreed to open one piece of luggage at a time.
• A light first week: I kept my first week back as free of commitments as possible.
• A priority list: before leaving, I prepared a short list of things to tackle on my return— it has been helping me feel in control without feeling overwhelmed.
Hope this is helpful to many of you!
Chris