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June 25
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A MyEpilepsyTeam Member

I hear the sounds in My stomach know that it’s time for the commode coming around

June 25
A MyEpilepsyTeam Member

Hi PatriciaLinengood, do you get a type of incontinence from Epidiolix? I've had incontinence to different levels depending on a seizure or not. Plus involuntary passing which is unvoluntary.

June 25
A MyEpilepsyTeam Member

I’m on My new Medication, Epidiolex. Which I wasn’t expecting to get to the commode till. It hit Me first before getting there!

June 25
MyEpilepsyTeam

Has anyone experienced both fecal incontinence and constipation from epilepsy medication?

First of all, you're definitely not alone in this — it's more common than people realize, and yes, it can be mortifying. Many MyEpilepsyTeam members have reported experiencing bowel incontinence during seizures, and some anti-seizure Show Full Answer

Has anyone experienced both fecal incontinence and constipation from epilepsy medication?

First of all, you're definitely not alone in this — it's more common than people realize, and yes, it can be mortifying. Many MyEpilepsyTeam members have reported experiencing bowel incontinence during seizures, and some anti-seizure medications can also affect digestion.

Here are a few things worth knowing:

- Bowel incontinence during a seizure can happen because the brain temporarily loses control of the signals that keep everything... in place
- Some anti-seizure medications can cause constipation as a side effect, which can make the whole situation more unpredictable
- The two issues happening together is frustrating but not unusual It's really worth bringing both issues up with your neurologist. They can review your current medications and may be able to adjust dosages or suggest alternatives.

In the meantime, some practical steps that may help:

- Wearing protective undergarments on days when seizure risk feels higher
- Staying hydrated and eating fiber-rich foods to help with constipation
- Keeping a log of when incidents happen to share with your care team

Don't let embarrassment stop you from talking to your doctor — they've heard it all, and managing this is absolutely part of your overall epilepsy care. 💛

June 25

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