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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 23
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A MyEpilepsyTeam Member

I had prostrate surgery and had to wear adult diapers. Don't be embarrassed! Just think about how many other people are doing same as you. It is what it is!

June 25
MyEpilepsyTeam

Managing incontinence during seizures is something many people with epilepsy deal with — and you're definitely not alone in this. Nearly 40% of people with epilepsy experience at least one urinary symptom, with incontinence being the most common. It happens because seizures disrupt the brain's signals that control the Show Full Answer

Managing incontinence during seizures is something many people with epilepsy deal with — and you're definitely not alone in this. Nearly 40% of people with epilepsy experience at least one urinary symptom, with incontinence being the most common. It happens because seizures disrupt the brain's signals that control the bladder.

Here are some practical steps that can help:

- Wear protective garments — Specialized absorbent undergarments come in many styles, sizes, and materials (reusable or disposable). Many MyEpilepsyTeam members find these give them confidence to go about daily life.
- Carry an emergency kit — Keep one at home, work, school, or in your car. It could include:
- A change of clothes
- Spare undergarments
- Disposable gloves and wipes
- Protective garments
- Talk to your doctor — They can offer guidance tailored to your specific situation and seizure type. The emotional side of this is just as real as the physical side. Feelings of embarrassment or anxiety are completely valid. As one MyEpilepsyTeam member put it, "Most people couldn't handle what we go through on a daily basis" — and that's true.

If anxiety about incontinence is stopping you from leaving home or doing things you enjoy, it's worth speaking to your doctor or a mental health professional. There are options available to help manage that fear.

June 23
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
When I was 13 years old I was in school. One day I needed to use the restroom so I got up and asked my teacher if I could. My teacher told me no so I sat back down at my desk. The next thing I knew I looked down and my pants were soaked. I happened to have a seizure and wet my pants. My mom had to leave work and brought me a new set of clothes. While she was at the school she had a word with the teacher who wouldn’t let me use the restroom when I had asked.

June 25

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