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If so what has been your experience?
Have you used any other company if so how were they? I don’t want to tint my prescription lenses yet until I really try this all and do all my research!

May 30
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A MyEpilepsyTeam Member

I have lenses that will change as necessary. Since I needed to purchase new eyeglasses anyway so I chose to do something for my health needs. I decided to get transitions. When the lights get bright, the lenses will get a sapphire blue hue to them. This action does two things; 1, it helps keep the level of migraines down to a minimum as the blue hue keeps away bright light. 2, I have noticed having the sapphire blue hue is also of help to me when managing better maintenance for seizure activity as I don't experience them like I use to when bright lights will take place.

I have gotten a lot of benefit having the sapphire blue hue transition added to these eyeglasses, it was the best thing I could have done as it helps me so much. This is something I will continue doing now that I know this is something that has a very high benefit for helping me manage my medical issues. By the way, I was able to obtain the settings for the new eyeglasses at Sam's Optical, they are inside Sam's Club. And I got a fantastic pricing deal with my insurance so it has been a win-win situation!

May 31
A MyEpilepsyTeam Member

Are they prescription lenses?

June 3 (edited)
MyEpilepsyTeam

That's great that the FL-41 lenses are already helping with light sensitivity! Doing your research before committing to tinted prescription lenses is a really smart approach.

A MyEpilepsyTeam member shared a similar experience using Zeiss Z1 goggles, noting they were able to get through an entire live show with strobes by Show Full Answer

That's great that the FL-41 lenses are already helping with light sensitivity! Doing your research before committing to tinted prescription lenses is a really smart approach.

A MyEpilepsyTeam member shared a similar experience using Zeiss Z1 goggles, noting they were able to get through an entire live show with strobes by using the lenses along with some creative shading. Another member simply said their tinted glasses "really helped" — so you're definitely not alone in finding relief this way! Research does support that tinted lenses can be effective for photosensitive epilepsy. Here's a quick breakdown of what's known:

- Blue lenses (like the Zeiss Z1) have shown strong results in studies, reducing or eliminating photosensitive seizure responses in a large majority of participants
- Brown and neutral density lenses also showed some benefit, just not as strongly as blue lenses
- Any tinted lens may offer some level of help, even if it's not the "optimal" color

A few important things to keep in mind:

- Glasses should complement your medication, not replace it
- Avoid driving or operating machinery until you're fully confident in your vision with the lenses
- Tracking your seizures with and without the glasses can help you measure how well they're working

Chatting with your neurologist about your experience is always a good idea — they can help you figure out if the lenses are genuinely making a difference and guide next steps, including whether tinting your prescription lenses eventually makes sense for you.

May 30

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