Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Albuquerque, NM

I just started wearing red-tinted glasses because I was having symptoms related to bright lights shining in my eyes, including sharp pain in the back of my head, weakness in my knees and dizziness. They are in the process of running a bunch of tests to narrow down the cause. I had a 1-hour EEG last month. I'll have a 4-hour EEG and MRI next week followed by a meeting with an epileptologist. I think the glasses help somewhat. I got them from my theraspecs after trying multiple colored tints.

May 27
 · 
Reactions
A MyEpilepsyTeam Member

Good post, I agree with the ai mentioned about and other people's opinions here, I have not had those, but everyone else is different, but do get other people's opinions here and then go to your doc about the situation you have at hand and go from there about it and good luck with your outcome with it and your well-being in the long run my opinion here amen

May 28
MyEpilepsyTeam

It's great that you're being so proactive about finding what works for you, and that the red-tinted glasses seem to be helping somewhat! Tinted glasses are definitely something people with photosensitive epilepsy explore, and there's real research behind them.

The idea is that certain lens colors can reduce the brain's Show Full Answer

It's great that you're being so proactive about finding what works for you, and that the red-tinted glasses seem to be helping somewhat! Tinted glasses are definitely something people with photosensitive epilepsy explore, and there's real research behind them.

The idea is that certain lens colors can reduce the brain's response to triggering light patterns. Studies have looked at several tints, and here's what the research suggests:

- Blue lenses (especially the Zeiss Z1/F133 lens) have shown the strongest results in studies, reducing or eliminating photosensitive seizure responses in a large percentage of participants
- Neutral density lenses (which lower overall color intensity) have also shown some benefit
- Other tinted lenses, including various colors, have helped some people even if the research is less definitive A MyEpilepsyTeam member shared that Zeiss Z1 goggles helped them get through an entire live show with strobes, saying they were happy with the results. Another member simply noted, "My glasses have a tint on them, which really has helped."

A few important things to keep in mind:

- Glasses should complement medication, not replace it
- If you find the Zeiss F133 Z1 lenses, those may be worth asking your epileptologist about
- Insurance coverage for these glasses can be tricky — your doctor may be able to help navigate that
- Give your eyes time to adjust to any new lenses before driving or operating machinery

Your upcoming appointments with the epileptologist sound like a perfect opportunity to bring this up and get personalized guidance on whether your current tint is the best fit for you.

May 27
A MyEpilepsyTeam Member

I haven’t. I know there are special glasses for photosensitivity Epilepsy.
I don’t know if there are any glasses for migraines

May 28 (edited)

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭
Florida City, FL

A MyEpilepsyTeam Member asked a question 💭
Marrero, LA