Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I was just on FaceTime with my sister, trying to take care of monthly bills with my Insurance.

A MyEpilepsyTeam Member asked a question 💭
Charlotte, NC

What I'd like to know if any of you have gone through frustration with family because having to make complete calls over and over. She doesn't seem to get it can be so stressful having to deal with so much.
Or what can happen due to dealing with so much and not getting things done quicker, I lost my patience and closed my computer. Does any1 think I over did it or understand my frustration.

May 20
 · 
Reactions

Answer Summary

Members connected over the stress of managing insurance, bills, and daily tasks while living with epilepsy, with many validating the original... Read more

Members connected over the stress of managing insurance, bills, and daily tasks while living with epilepsy, with many validating the original poster's frustration and sharing that losing patience in overwhelming moments is completely understandable. Several members shared that family members often fail to grasp the added challenges epilepsy brings, while others found more support from community groups, volunteer organizations, and the Epilepsy Foundation than from their own relatives. A recurring theme was that building a personal support network outside of family, whether through this group or local resources, can make a meaningful difference in managing stress and feeling less alone.

A MyEpilepsyTeam Member

LoriHobgoodLewis, I have learned that family isn't much different than strangers when it comes to understanding what you're truly going through unless they're special people!!!!! Don't stress yourself over dealing with family and find people within your community that will be a better source.
My family or people are those that understand the brain and the difficulties one goes through. For instance I've volunteered for Alzheimer's for 12 years and the folks that work there treat me like family and will bend over backwards to help me, because they understand the brain and have witnessed me have several seizures. Where my sister suggested after seeing one seizure and had to pick me up from the ER later that I euthanize myself. As you may imagine we haven't spoken again since May 2018 and I didn't overreact.

Finding beautiful people in your community that understand you, without the stress is best. Always remember you're not alone on this journey

Much kindness and love

May 24
A MyEpilepsyTeam Member

Go to your banking institution, and get assistance to set up bill pay. It is private, secure, and its insured in case of fraudulent charges.

May 24
A MyEpilepsyTeam Member

Many times relatives don’t realize that They are the source of stress for You!

May 20
MyEpilepsyTeam

That frustration is completely valid and so understandable. Managing insurance bills is stressful for anyone, but when you're also managing epilepsy, the mental and emotional load can feel overwhelming. Losing patience in that moment doesn't mean you overdid it — it means you're human. A MyEpilepsyTeam member once shared Show Full Answer

That frustration is completely valid and so understandable. Managing insurance bills is stressful for anyone, but when you're also managing epilepsy, the mental and emotional load can feel overwhelming. Losing patience in that moment doesn't mean you overdid it — it means you're human. A MyEpilepsyTeam member once shared: "The past week has been pretty rough... but I truly believe that you can change your future by how you choose to view your present." That kind of perspective can really help on tough days like this one. It might help to try a few things going forward:

- Keep notes from every call — names, reference numbers, and what was discussed
- Request itemized bills so you can review charges clearly and at your own pace
- Take breaks between stressful tasks — self-care isn't selfish, it's necessary
- Be patient with yourself — one step at a time really does make a difference As for your sister, sometimes people just need time to understand what managing epilepsy alongside everyday life really looks like. You're carrying a lot, and that deserves acknowledgment — from others and from yourself too. 💙

May 20
A MyEpilepsyTeam Member

Hallo from William and Jen .. from our experience .. we find there be no smaller side of epilepsy .. which be why this site be so grand .. here we feel safe in saying what we feel .. my words not coming to me easy either .. our hearts break for you 💔😭😢.. please be knowing you be understood and accepted on here .. where you can be saying what you feel .. and not made to be feeling bad for doing so .. hugs and prayers from William and Jen 💜💙🤗🤗🕊

June 7 (edited)

Related Questions

View All
A Mother’s Story of Managing Seizures (VIDEO)
You’ve Just Been Diagnosed With Epilepsy. Now What?
Tap Into the Power of Directness: Use "I"