Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people whoโ€™ve been there
  •   People who understand what youโ€™re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 19
 · 
Reactions

Answer Summary

Members responded with care and practical ideas to someone with seizures who is afraid of living alone, sharing a range of safety strategies... Read more

Members responded with care and practical ideas to someone with seizures who is afraid of living alone, sharing a range of safety strategies they personally rely on. Several members described using medical alert devices like Lifeline buttons, giving spare keys to trusted friends or family, and arranging for regular check-ins so someone will notice if they go unheard from. A recurring theme was the comfort found in building a support network through neighbors, caregivers, and loved ones, alongside encouragement to speak openly with a doctor about emergency options.

A MyEpilepsyTeam Member

Hallo Bernadette .. hard it be ,, and brave too .. to be living alone with epilepsy .. if you be having family and friends to check on you each day that help peace of mind ,, and Jen and me find getting to know your neighbors ., and letting them know how you be can help too .. sometimes a good neighbor can become a good friend who understand and be there for you .. on here you be having us all to talk to .. and that be a blessing for us all ., hugs and prayers from William and Jen ๐Ÿ’œ๐Ÿ’™๐Ÿค—๐Ÿค—๐Ÿ•Š๐Ÿ•Š

May 20 (edited)
A MyEpilepsyTeam Member

I gave keys to different friends, and if they canโ€™t get ahold of me for 3 or more days, they will come over and make sure Iโ€™m ok. If I wanted to, I could move into long term care or senior care ( even though Iโ€™m not an elder or a senior); but I enjoy my freedom of being able to do whatever I want when I want. I donโ€™t have to eat when they bring food, I can come and go as I please, I donโ€™t have to sign out when I leave or have someone come with me and I have to wait until they can come with me and all that stuff. I enjoy my privacy too much. So I prefer knowing that friends will come over and check on me, or my family will have the police come do a welfare check.

May 20
MyEpilepsyTeam

That fear is completely understandable, and it's great that you're taking steps to think about safety. There are several monitoring and alert options that can help give you and your loved ones peace of mind.

Here are some options worth exploring:

- Seizure monitoring cameras โ€“ Infrared cameras like the SAMi-3 can detect Show Full Answer

That fear is completely understandable, and it's great that you're taking steps to think about safety. There are several monitoring and alert options that can help give you and your loved ones peace of mind.

Here are some options worth exploring:

- Seizure monitoring cameras โ€“ Infrared cameras like the SAMi-3 can detect seizure-related movements and sounds, trigger an alarm, and alert a caregiver automatically
- Mattress sensors โ€“ Devices placed under your mattress can detect unusual body movements or sounds associated with seizures and send alerts via a pager or app
- Wearable alert devices โ€“ Some wearables can detect seizure activity and notify emergency contacts or even call for help
- Medical alert bracelets โ€“ These help first responders quickly identify that you have epilepsy if they find you unresponsive When choosing a device, it helps to think through a few things:

- Do you want something wearable or something that monitors while you sleep?
- Do you need GPS for use outside your home?
- Would you like it to connect to an app that alerts people outside your apartment?
- How will data be shared with your care team?

It's also worth creating a seizure action plan โ€” a simple document that outlines what to do in an emergency โ€” and sharing it with trusted neighbors, friends, or family.

Talking to your neurologist about your specific seizure type can help them recommend the most suitable monitoring option for your situation.

May 19
A MyEpilepsyTeam Member

Ask your Dr for a device in case you fall .. it will call 911 for you .. even if you don't respond 911 will show up you have to have a way for them to come in ..m

May 21
A MyEpilepsyTeam Member

I have a Caregiver who comes 3 days a week in the morning. They see I took my medications ( I have a alarm on my watch). I cannot cook, so they prepare meals, help keep the place organized and somewhat clean. I asked my Neurologist about Emegency Medications. She said I do not need them. Where I live is Elderly Housing, and they have no Medical Training here. There is no Liability Insurance here, so they just call 911. Normally I am in the apartment by myself.

May 19

Related Questions

View All