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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can anyone share their VNS experience?

A MyEpilepsyTeam Member asked a question 💭
Orlando, FL

Medication hasnt worked for a few years, RNS isn’t an option because i have activity everyyywhere. So I just want to hear how others experience was with VNS because i may consider it/:

April 18
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Reactions
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , Team member @A MyEpilepsyTeam Member has said he had the VNS but that it didn’t help him much. He then got an RNS but not to long ago he said his doctor decided not to use it anymore. He can talk to you more about that. Good luck. Your friend in Texas, Becky

April 18
A MyEpilepsyTeam Member

I.had the VNS implant years ago, it wasn't helping me at first. I questioned the Dr. I saw at the time and was told it would take adjusting to which took about a year. It worked good for me then.

April 18
A MyEpilepsyTeam Member

I had the a VNS implant many years ago. Didn't help me.

April 18
A MyEpilepsyTeam Member

20 yrs I hadmy

April 22
A MyEpilepsyTeam Member

Years

April 22

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