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If he only knew how exhausted I am now.

April 9
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A MyEpilepsyTeam Member

I know what u mean Quinn. I just filled up my water jug and then refilled the Britta jug, let the dogs out, filled their water bowl and food bowls and then let them back in, and now I’m so tired I’m fighting to stay awake. This type of thing happens quite often to me. I don’t usually try fighting the sleep, but it’s close to the time when I usually get ready for bed and I want to stick to the schedule so I’m not awake at 1 am or around that time. Please don’t take this the wrong way, but it seems like u really do want a wheelchair instead of trying the physio or something else that the drs or nurse practitioners have suggested. Ever since I joined the site a couple years ago, that’s all u’ve talked about. I truly understand that ur body needs to be balanced so that u don’t fall or have ur legs give out under u. But wouldn’t it be better to try physio or whatever else the practitioner has suggested rather than just giving up b4 u even try? I have been offered a wheelchair for close to the same reason as u, but I didn’t take it as I don’t want to lose muscle strength even more than I already have. I did accept a cane and a walker, but haven’t used the walker in almost 5 years just because I don’t want to loose anymore muscle mass and end up having to use a wheelchair to do or go anywhere. And please don’t be angry about my saying this as it comes from a place of caring about and for ur health. And I’ve said over and over again that I’m a very blunt person who doesn’t believe in tiptoeing around for the sake of not offending anyone. In my opinion and experience, it’s better to build up ur muscles first rather than just throwing in the towel and insisting on a wheelchair that will make things worse for urself in the long term. But I fully agree that u need something to stay balanced, quit falling or have ur legs give out beneath u for ur and others safety.

April 9
A MyEpilepsyTeam Member

I've been doing chores slowly and took my dog out also. I got some exercise walking but when came back in I had to lay down a bit, feel like going back again.
It's not going to ruin my day, but slow it down now yes!

April 9
MyEpilepsyTeam

Why does even a short walk leave you feeling completely drained?

That sudden exhaustion after minimal activity is a real struggle many people with epilepsy face. Fatigue is actually one of the most common symptoms — people with epilepsy experience it up to 4 times more often than those without the condition.

This isn't just Show Full Answer

Why does even a short walk leave you feeling completely drained?

That sudden exhaustion after minimal activity is a real struggle many people with epilepsy face. Fatigue is actually one of the most common symptoms — people with epilepsy experience it up to 4 times more often than those without the condition.

This isn't just regular tiredness. It's a persistent, draining exhaustion that can hit hard even after simple tasks like taking your pup outside. Several factors might be contributing:

Seizure-related fatigue — If you've had recent seizure activity (even at night), your body may still be recovering. Recovery after seizures is often compared to running a marathon, leaving muscles weak and energy depleted.

Medication side effects — Anti-seizure medications commonly cause fatigue, dizziness, or that "not feeling like yourself" sensation.

Depression connection — About one-third of people with epilepsy experience depression, which can significantly worsen fatigue.

Sleep disruptions — Poor sleep quality or nocturnal seizures can drain your energy for days.

Consider tracking when your fatigue is worst and talk with your doctor about it. They might adjust your medication timing or treatment plan to help you regain more energy throughout the day.

April 9
A MyEpilepsyTeam Member

StanClark,
I’ve pretty much made my mind up what I’m going to tell the nurse practitioner in June when I see her again. I’m going to request that I be fitted for a rigid wheelchair.♿️ At this point instead of doing test after test to figure this out plus not knowing if physical therapy is gonna help I think that’s why I’m gonna go ahead and tell them. I’ve got no problem getting around on wheels. Not that I wanna have to do this. It’s just I feel it’s probably the best way to go from me so I won’t tire out so quickly trying to push around on foot. I’m already seeing trying to do that. It’s just wearing me out more.. I just feel I’d be safer if I did get around in a rigid wheelchair.♿️ in my opinion.

April 9 (edited)
A MyEpilepsyTeam Member

Every Morning, I Drink My Homemade Ginger Tea. I Do My Daily Stretches, Yoga & Go To The Gym Monday, Wednesday & Friday. Once I Get Home, I Feel Very Tired

April 21

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