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The way my body is feeling today I’m just electing to just lounge around in my pjs for the day today My legs still feel the most fatigued

A MyEpilepsyTeam Member asked a question 💭
Hayes, VA

and weak as well. I’m only going to put my moccasin slippers on if I have to take Sammy outside. Oh the joys of living with hydrocephalus and epilepsy 😩

April 1
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Answer Summary

Members connected over the shared experience of severe fatigue and weakness that forces them to stay in pajamas and on the couch for entire... Read more

Members connected over the shared experience of severe fatigue and weakness that forces them to stay in pajamas and on the couch for entire days, with many describing how pushing through only makes symptoms worse. Several members shared coping strategies including staying comfortable in loose clothing, keeping electrolytes nearby, doing gentle stretching or yoga when possible, and giving themselves permission to rest without guilt even if tasks go undone. A recurring theme was the isolation of living with invisible symptoms that family and friends struggle to understand, with members offering each other validation that it's okay to listen to your body's limits and take things one step at a time.

A MyEpilepsyTeam Member

I’m sure a few of us know what you feel. I just make sure I that I get some electrolytes in my body and stretch when I’m feeling like that

April 1
A MyEpilepsyTeam Member

I had days I just want to hang out in my pjs. I still do my tasks but mostly just work on my hobbies and watch tv. Now that it is warm outside I get dressed so I can sit on the porch and listen to the birds.It is very relaxing to listen to the birds.

April 1
A MyEpilepsyTeam Member

LoriHobgoodLewis We all have our struggles in our own ways while having to live with this condition. Hopefully you kick that cold soon for now just stay comfy in your pjs and robe with your fuzzy slippers as well and kick that cold where it belongs. I find when I feel bad is to stay comfortable as much as possible when I’m feeling sluggish or legs feel weak. The best thing is to have on is my pjs.feel better soon sweetie

April 3
MyEpilepsyTeam

How can you manage fatigue and weakness when living with epilepsy?

It sounds like you're listening to your body, which is really important. Fatigue and muscle weakness are common experiences for people with epilepsy, and taking rest days is a valid way to care for yourself.

Many MyEpilepsyTeam members have shared similar Show Full Answer

How can you manage fatigue and weakness when living with epilepsy?

It sounds like you're listening to your body, which is really important. Fatigue and muscle weakness are common experiences for people with epilepsy, and taking rest days is a valid way to care for yourself.

Many MyEpilepsyTeam members have shared similar experiences. One member said, "If I'm tired, I'm going to rest. Hearing from others with epilepsy has taught me that I have to prioritize ME." Another member emphasized, "I don't care anymore. Most people couldn't handle what we go through on a daily basis."

Fatigue in epilepsy can come from several sources:
* Recovery after seizures (postictal fatigue)
* Side effects from anti-seizure medications
* Disrupted sleep from nocturnal seizures
* Depression, which affects about one-third of people with epilepsy

The leg weakness and fatigue you're experiencing could be related to any of these factors. One member described it well: "It's often compared to running a marathon. Your muscles are weak, everything hurts, and you are plain tired."

Some strategies that might help include tracking your fatigue patterns in a seizure diary, talking with your doctor about medication adjustments if needed, and incorporating gentle movement like yoga when you're feeling up to it.

For today though, lounging in your PJs and resting is exactly what your body needs. You're doing the right thing by honoring that.

April 1
A MyEpilepsyTeam Member

Just one step at a time. Maybe just do some deep breathing and relaxing yoga. That has helped me.

April 12

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