Hallo Everyone .. this be William .. as I be suffering from LTL ictal asystole., my brain's ability to control my body temp be pretty much gone ., so I be also suffering CIRE seizures ., this mean cold induced reflex epilepsy.. actually not just cold .. more like a severe or quick shift from hot to cold ANYTHING bring them on .. they be focal aware seizures ., unlike my other nocturnal seizures which I be sleeping through ., I be awake and shaking with severe chills called rigours.. that will not stop until I be warm ., sometime they be so violent they crack my ribs worse than the CPR my Jen use for my other seizures that be stopping my heart ., worst time is when there be severe storms with sudden drops in barometric pressure ., one minute I resting comfortable in my bed along side my wife Jen .. next minute I be shaking her out of bed ., these go on and on .. until storm passes.. or I pass out from exhaustion and dehydration .,when that happen Jen and Joe .. our middle son who staying with us ., be taking me to hospital ., as I will be needing IVs and warming to bring me back awake .. this only happen when storm be severe ., like in winter during blizxard ., most times this just be annoying fact or life for us .. so summer heat bad in that going into AC from outside can trigger .. and also high humidity ., we be fighting this for so long we be use to it .. yet even at its worst CIRE seizures be way better than nocturnal flatlines that be stealing my life like a deadly thief in the night .. but for my Jen and her diligience in watching over me .. I be long gone .. I be not ashamed to be saying I owe my life to my dear wife .. so thankful I be to Our Father ., who be giving to me my beloved wife ., tu mo ghra, Jen💜💙 .. hugs and prayers from William and Jen💜💙🤗🕊

Hallo Nathan .. we be loving Charlie Brown too .. and we think of epilepsy as a storm in our brain ., so this one really be hitting the mark for us ., Nathan .. Jen and me read your story .. and what you went through .. and go through ., is devastating .. that be why to us this site be so vital ., to be meeting with others who be suffering this awful condition ., in each of us it be different ., yet the same in the fear we feel ., the isolation we endure ., the stigma we face ., we all be warriors ., and our strength ., our courage ., we gain from each other .. each story be important .. just as each of us be .. Our Father make us all ., He give us work to do as we be able.. each one of us He call the spple of His eye .. me and Jen grateful to be here ., and we thank you and treasure you as a friend .. Slan mo charaid .. hugs and prayers from William and Jen💜💙🤗🕊

The weather cannot make up its mind here in columbia sc. it is 85 degress today and for the next few days. However, it will be in the 60s soon and cold at night. It does feel good to wear my shorts this week. I have not packed up my winter clothes yet or unpacked all my summer clothes. LOL

The weather won’t make up its mind here. One week it would be 50s or 60s here . That’s warm shorts weather with a spring jacket or hoody .

We would have a few days of those nice temps. Then all of a sudden it’s cold again 30’s or less. And a threat of snow

I like Charlie Brown. William that's more than I can ever imagine and puts me to shame. I'm exceedingly happy God has blessed you with Jen to be by your side and an everlasting faith in Him that has held you & Jen & Joe through thick and thin nomatter what the circumstance. It's an honor knowing you.
By the way, I love the pic it tells a lot. I miss all the Charlie Brown we grew up with.