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Not knowing what your body will do unexpectedly do to your epilepsy condition. Symptoms like fatigue weakness in the legs and so forth.

March 21
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Answer Summary

Members responding to the question about feeling confined by epilepsy overwhelmingly shared that the condition creates real limits on daily... Read more

Members responding to the question about feeling confined by epilepsy overwhelmingly shared that the condition creates real limits on daily life, from avoiding going out alone to losing the ability to drive or walk freely in their communities. Many described physical challenges like leg weakness, balance issues, foot pain, and fatigue that make leaving home feel risky or exhausting, and several noted that unexplained symptoms like neuropathy may be linked to long-term medication use. A recurring theme was finding comfort in this community when family members struggle to understand, with members encouraging each other to learn their warning signs, stay as active as safely possible, and lean on one another for support.

A MyEpilepsyTeam Member

I used to until I got my Driver's License. Now it is because my dad is a 100% Disabled American Combat Veteran and I am home a lot because I take care of my dad!

March 25
A MyEpilepsyTeam Member

Babygirl68, I’m still monitoring the weakness i feel through both my legs. Plus the days I get off balance. Some days that happens to me on several occasions.. as much as I hate having a medical test done. I’m actually anxious to get this MRI all the way so I know if there’s some internally that’s there that’s causing my symptoms. It’s been going through the back of my mind for quite some time now.. + it makes you somewhat self-conscious when you start having stuff like that going on

April 29
A MyEpilepsyTeam Member

I think the main thing is you have to get to know your warning signs and know when you need to slow things down a little bit. this is something I've had to learn the hard way but it is incredibly important to not push yourself more than your body can handle

March 24
A MyEpilepsyTeam Member

All the time. But we need to live our lives to keep living. The best I can do is keep my phone and ID for emergencies and stay in at least a moderately populated area should something happen outdoors or in public.

March 23
A MyEpilepsyTeam Member

I never did, unless I didn't feel well. I didn't feel uncomfortable on taking my chances. I've paid for it a few times, always some1 to help me including those I didn't know. Not having Epilepsy at 1st, once did wasn't going to let it
live my life for me.

March 21

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