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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

A neutral? As for your doc and if you moved, and do it seem to be where it may effect you leaving the doc you had and getting a new one?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

Curious, I at first when diagnosed with didn't know what was happening and went through a few doctors and such etc, but I moved out of my state of Illinois and finally got a couple of doc who saw me but eventually found my current facility that are dealing with me and my condition for the past 7 years now est, I don't have a problem with referrals and things of those lines when brought up to me by my doc and suggestions, but I have docs replaced because they moved and where replaced by another… read more

March 13
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Answer Summary

Members shared their experiences navigating epilepsy care across moves and doctor changes, with many emphasizing the critical importance of... Read more

Members shared their experiences navigating epilepsy care across moves and doctor changes, with many emphasizing the critical importance of coordinating specialists when managing complex, multi-system conditions like epilepsy alongside diabetes, heart issues, or other complications. Several members described challenges finding new doctors after relocating, especially in rural or underserved areas, with some waiting years to secure quality care while others fought to stay with trusted out-of-area specialists rather than start over with someone unfamiliar. A recurring theme was gratitude for long-term relationships with skilled epileptologists and the difficulty of replacing doctors who truly understand rare or complicated cases, balanced by encouragement to advocate fiercely for continuity of care and to research and stay informed when navigating transitions.

MyEpilepsyTeam

How does moving and changing doctors affect your epilepsy care, and how do you adjust to new providers?

It sounds like you've navigated the transition well! Moving and changing doctors is a common experience for people with epilepsy, and your adaptability is really valuable.

Many people find that the initial adjustment period Show Full Answer

How does moving and changing doctors affect your epilepsy care, and how do you adjust to new providers?

It sounds like you've navigated the transition well! Moving and changing doctors is a common experience for people with epilepsy, and your adaptability is really valuable.

Many people find that the initial adjustment period after diagnosis involves trying different doctors until finding the right fit. Your experience of going through a few doctors before settling with your current facility for 7 years shows you found a good match.

When doctors change due to relocation or replacement, it's normal to need time to adjust to their style and personality. The key is maintaining continuity of care - making sure your medical history, seizure patterns, and treatment plans transfer smoothly.

Here are some tips for successful transitions:

* Keep detailed records of your seizure history and medications
* Ask your current doctor for recommendations when relocating
* Request referrals to specialists in your new area
* Bring reports of EEGs, MRI scans, and other diagnostic studies to new appointments
* Consider bringing a trusted person to initial appointments to help process information

Your openness to referrals and suggestions from your doctors is excellent. That collaborative approach helps ensure you're getting the best possible care, even when providers change.

March 13
A MyEpilepsyTeam Member

Hi Vickie. We’re on the same page because the epileptologist I had was for five years and he taught me so much.. I got sad because he retired, but it is what it is. I have a new epileptologist, so I’m still getting used to how she helps out. I just feel very blessed to have an epileptologist because there are not many out there. In order to continue helping myself, I love to research which makes me feel happy and proud of myself to continue learning!

March 19
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, Knowing that can be a pain from my earlier days. Do hope you'll be able to find a better 1 soon.

March 23
A MyEpilepsyTeam Member

If you move, it is hard to find a new doctor where you move to. We are short in doctors in BC so you are lucky if you can find one where you move to. I moved at least 5 times and I didn't have a doctor in 5 moves until I finally got a doctor in 2019 but she was not good. She said my Osteoporosis is not that bad and would not help me, so I always went on the internet for answers until I got my new Good doctor last year 2025. It wasn't until I fell 2 years ago on a concrete overpass and hurt my right hand. It still hurt so when I went to my new doctor and told him my right finger is still sore from the fall, he sent me for an x-ray and that showed up that my hand bones were thin. Since then I have been on the pill for Osteoporosis. He make sure I am taking it. When I am low, I just tell him my pills are low and he sends a refill in to the pharmacy. He is very very good.
You just cannot trust all doctors, and the recent old doctor was a Female - that is not a good thing to hear about a female doctor.

March 13 (edited)
A MyEpilepsyTeam Member

I hope you all find an epileptologist soon because there are not many in California. We need their advice as soon as possible so we can get better and live happen again.

March 14

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