Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Sussex, NJ

Personally, I consider it a chronic illness and/or a disability, but I'm wondering what others think.

February 17
 · 
Reactions

Answer Summary

Members shared their personal views on whether epilepsy is a disability, chronic illness, disorder, or disease, with many agreeing that... Read more

Members shared their personal views on whether epilepsy is a disability, chronic illness, disorder, or disease, with many agreeing that 'disease' feels the most inaccurate because it wrongly implies being contagious. Several members described living on SSDI, being unable to drive or work, and finding practical support like state-funded transportation programs arranged through their epilepsy specialists. A recurring theme was that epilepsy looks different for everyone, and members encouraged each other to define it in the way that best fits their own experience.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Me too!! Disease makes it sound like I'm contagious!

February 17
A MyEpilepsyTeam Member

I consider the basic epilepsy a disorder or a condition .

I hate when I see Epilepsy titled as a Disease.

February 17
A MyEpilepsyTeam Member

I agree to that @A MyEpilepsyTeam Member

February 17
A MyEpilepsyTeam Member

Its a chronic condition that effects you neurologially.

March 7
A MyEpilepsyTeam Member

Epilepsy is a disability. Many have different versions of this disorder. There are some that have the ability to do many things throughout the day even drive then there are others that can do very little because how the Epilepsy has damaged the central nervous system. As I stated, every person with this disability is different. The epilepsy specialist can provide a specific form that will assist the ability to obtain transportation from county, city, state that is given to those with disabilities. I had my epilepsy specialist fill out this form that was provided to my state benefits specialist who has been assisting me. By doing so when needed I can phone the transportation office ahead of time and schedule a pick up time for a particular visit to a doctor's office as an example.

February 20

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭
Macon, GA

A MyEpilepsyTeam Member asked a question 💭
Houston, TX