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Temporal lobe epilepsy info

A MyEpilepsyTeam Member asked a question 💭
Westover, WV
February 16
 · 
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member In the detailed report I got from my Seer eeg. They explained my seizure would start in the Temporal lobe then spread through the parietal lobe and sometimes reach the occipital lobe. This is only explaining how the seizures spread when it stays on one side. So this is a Impaired seizure not TC.

February 17 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member

February 17 (edited)
A MyEpilepsyTeam Member

I have TLE. I see you have been asking about eeg? If you do definitely have TLE then normally you won't need to have a seizure as such during the eeg as such. The TLE scaring would cause abnormalities in the brain waves (not a seizure) If these waves happen during the test then normally this is fine unless for some reason, they are trying to pick a seizure up on eeg. But if they want that they really should be doing a long term test (a few days) and they really need a strong case that seizures are happening, and you just don't know its going on. This would be the highest chance to pick one up. The issue is it can take a long time of short eeg's before they decide they should do it. I went through all this from 2017-2024.

February 16
MyEpilepsyTeam

What is temporal lobe epilepsy?

Temporal lobe epilepsy (TLE) is the most common type of focal epilepsy, affecting seizure activity on one side of the brain. It starts in the temporal lobe, located just behind the ear, which handles processing sound, understanding language, emotions, and memories.

There are two main types:

- Show Full Answer

What is temporal lobe epilepsy?

Temporal lobe epilepsy (TLE) is the most common type of focal epilepsy, affecting seizure activity on one side of the brain. It starts in the temporal lobe, located just behind the ear, which handles processing sound, understanding language, emotions, and memories.

There are two main types:

- Mesial TLE: Seizures begin in internal structures like the hippocampus or amygdala
- Neocortical TLE: Seizures start in the outer part of the temporal lobe

About 6 out of 10 people with focal epilepsy have TLE, making it quite common among those with localized seizures. What are the symptoms?

TLE causes two main types of focal seizures:

Focal onset aware seizures (you remain conscious):
- Feeling "frozen" in place
- Rising sensation in the stomach
- Déjà vu
- Unusual smells or tastes
- Sudden intense emotions like fear or joy

Focal onset impaired awareness seizures (consciousness is affected):
- Staring into space
- Confusion
- Repetitive hand movements, lip smacking, or excessive blinking
- Difficulty speaking or reading
- Lasting 30 seconds to 2 minutes

Beyond seizures, TLE can cause memory problems, attention difficulties, mood changes, and depression. What causes it?

Many cases have unknown causes, but known risk factors include:

- Brain injuries or head trauma
- Central nervous system infections
- Scarring in the temporal lobe (hippocampal sclerosis)
- History of febrile seizures during childhood
- Genetic factors (the LGI1 gene has been linked to some cases)

The LGI1 gene affects a protein that helps control brain cell communication, though research continues into other genetic connections. How is it diagnosed and treated?

Diagnosis involves:
- Detailed medical history and physical exam
- EEG to record brain electrical activity
- MRI or CT scans to check for structural problems
- Blood tests to rule out infections

Treatment options include:
- Anti-seizure medications
- Surgery (temporal lobe resection)
- Dietary therapy
- Neuromodulatory devices like RNS therapy (which can reduce seizures by 75% after nine years)

TLE can be challenging to treat and may require combining multiple approaches. Working closely with your neurologist helps find what works best for your situation.

February 16
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I have Left Temporal Lobe Epilepsy.
Your temporal lobe can’t reach the other Sphere without going
all the way up through the Left Frontal Lobe , the Left Parietal lobe or both. Now if it is going thru the bottom of your lobe and reaching the bottom portion of the the right sphere . Which doesn’t travel as far to the other sphere.

February 17

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