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A neutral? As for medical test and medicine and procedures in the future, what would you like to see be introduced with it could be done?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

I'm curious and wondering is all, I am ok with the progress that is of today with, but later on with, I would be ok if they developed a once a year drug I take and get once a year Instead of each day with like now, what are your ideas if could be done with that post here, curious and wondering is all?

February 13 (edited)
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A MyEpilepsyTeam Member

I don’t think a once a year med or shot is viable. We all have different types and different levels of epilepsy. So if ur having multiple seizures a day or week, but I’m only having say one once a month ( I wish), how can we both get the same pill/shot? And in my case where I don’t know how many ill have in any given day, how can they adjust the dosage? Too little and I’ll still have them; too much and I’ll be walking around in a brain fog and possibly not be able to function. It’s just not realistic in my opinion

February 13
A MyEpilepsyTeam Member

I would be okay with anything less than twice a day which is what I have to take. I would be okay with take all my meds (sseizures and high blood pressure ) just in the morning.

February 14
MyEpilepsyTeam

What future improvements in epilepsy treatment would be helpful?

Your idea about a once-a-year medication instead of daily pills is really interesting! Missing doses can trigger seizures, so a long-acting option would be a game-changer for many people.

Medical and surgical treatment options for epilepsy are evolving quickly Show Full Answer

What future improvements in epilepsy treatment would be helpful?

Your idea about a once-a-year medication instead of daily pills is really interesting! Missing doses can trigger seizures, so a long-acting option would be a game-changer for many people.

Medical and surgical treatment options for epilepsy are evolving quickly. Current research is exploring several promising areas:

* New medications that work in different ways to control seizures
* Improved surgical techniques that are less invasive
* Better neuromodulation devices (like VNS improvements)
* Ways to intervene sooner after a first seizure to prevent further damage

The challenge right now is that there isn't one medication specifically designed just for epilepsy - most are medications that also treat other conditions. Finding the right medication or combination can take time and involve trial and error.

A once-yearly treatment would eliminate the daily worry about missing doses and potentially reduce side effects. It would also mean fewer blood tests to monitor medication levels and liver function.

What specific improvements would make the biggest difference in your daily life with epilepsy?

February 13
A MyEpilepsyTeam Member

One thing I know they have been developing for a while is more individualised treatments. It basically means that you would get testing done then they would pick meds that you should go on but also alter them to get the best out of them. Apparently, they can do this now but its very rare because it's so expensive to have done.

But as far as a once a year drug? I don't think they are any near this. There only just developing new ways of administering the drugs now and so far this nowhere near ready.

February 13 (edited)
A MyEpilepsyTeam Member

I doubt a once-a-year drug is viable. The NZ Government/Health Boards need to keep up to date with epilepsy treatments and ensure that there is the right level of backup health support available to all epilepsy sufferers.

February 13

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