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The effects of what it's going to happen after administered to that individual ? I am ok with has been given to me as for any meds or shots to my knowledge, but I am wondering and curious about the post here and I do ask about such things to the medical system and doc about it comes to me and decide to, some things I already know about and bypass when it comes about, just wondering is all? It could be a procedure and along those lines medical wise, my opinion here,? I've had my meds changed one… read more

February 5
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A MyEpilepsyTeam Member

I always consult with my Neurologist to make sure it is safe to get any shots or take any meds.

February 5
A MyEpilepsyTeam Member

They don’t. It’s as much as a guess for them as it is for us. I’ve been given things that have put me into anaphylactic shock more than once. And they say, well it was worth the try. Not to me it isn’t! I’ve been given things that if I’d taken them, they would’ve instantly killed me. That’s why I always check- double check what the manufacturer says about taking them and what the consequences might be. I’ve gone as far as calling the manufacturer and asking them if they would prescribe it to me and what the risks could be. I’ve asked different drs - who don’t know me personally if they would prescribe them to me and why or why not. The dr’s have no idea if we’ll have an adverse reaction to whatever they’re giving us will help or hurt us. I was told I had to get the flu shot ( I was 30 and never had one b4) as there was a very bad flu and cold going around that had already killed some ppl, and being autoimmune compromised, I was told I had to get one. I was so sick the first few hours, broke out in a rash from head to toe and then I had trouble breathing. My coworker took me to the hospital and I was told that I was going into anaphylaxis and it was a good thing I got there just in time for them to reverse it. So when covid came around, I wasn’t allowed to get the vaccine or the following booster shots, and thankfully I never had covid. So it’s as much as a crapshoot for them as it is for us. They don’t know how we’ll react to whatever they give us and neither do we

February 5
A MyEpilepsyTeam Member

Well, I know when it was brought up about my med first being changed Keppra was 1 on the list and to be honest I really didn't want to go on it at the time. There were another four meds that I could have ended up on but the way things went Keppra was the best option. I even looked into it after I was put on it and it most likely was. The only time I would of questioned it is if they had of tried it the first time when I was 4. That's not a great idea but still happens even today.

February 5
A MyEpilepsyTeam Member

Depends

February 18
MyEpilepsyTeam

How do medical professionals ensure medications and treatments are safe before they're given to individuals?

It's great that you're curious about how safety is determined! Before any medication or treatment reaches you, it goes through rigorous testing and review processes.

For new treatments, clinical trials are conducted in Show Full Answer

How do medical professionals ensure medications and treatments are safe before they're given to individuals?

It's great that you're curious about how safety is determined! Before any medication or treatment reaches you, it goes through rigorous testing and review processes.

For new treatments, clinical trials are conducted in phases to evaluate safety and effectiveness. The U.S. Food and Drug Administration (FDA) reviews trial plans to protect participants from unreasonable risk. An institutional review board also oversees volunteer safety and rights throughout the process.

If a drug shows unreasonable side effects during trials, the study gets suspended immediately. This multi-layered safety monitoring helps ensure treatments are as safe as possible before approval. When you're offered a new medication, procedure, or treatment, you have the right to full information through a process called "informed consent." This means:

- You'll receive detailed information about the treatment, possible risks, and what to expect
- You get adequate time to consider participation and ask questions
- You can discuss everything with your healthcare providers and family
- You can ask about time commitments, costs, and any other concerns

This open communication process ensures you're making informed decisions about your health. It's completely appropriate to ask your doctor questions about any medication or treatment before accepting it. It sounds like you're doing exactly the right thing by staying informed and asking questions when something new is suggested. Since you're stable on your current medications and comfortable with your treatment plan, that's wonderful!

Keep that open dialogue with your medical team. Your comfort level and understanding of your treatments matter, and asking questions helps you stay an active participant in your care.

February 5

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