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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

And other people's opinions about it, I think I do myself but do take into consideration what they say especially the medical system and my doc, I do take people's opinions I happen to discuss about my condition I have at my call or anything else dealing with my health overall in my life with, I am ok with doing that at my discretion and if I feel like it, I am not ashamed of my condition I have and my overall health currently, but I think my health overall including my condition is ok with me… read more

January 24
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A MyEpilepsyTeam Member

I follow my doctor's recommendations, but I am so lucky because he and I agree on my treatment. I do occasionally go down rabbit holes on the internet, but I realize I need to stop and I start finding pictures of cute kittens.

January 30
A MyEpilepsyTeam Member

Dwelling on your physical faults doesn't do an individual a bit.of good my
friends. All mankind has faults, BOTH PHYSICAL & PSYCHOLOGICAL. I've had a
tendency to do just that and it's worsened my sickness 10x worse etc...
I've beared my sickness(Epilepsy)since I was a youngster but wasn't
diagnosed until I graduated from college. Hey my physical issues
coordinating with my disability led to psychological effects that are
gruesome. My friends it may originate to a physical fault but
psychologically it will intensify the physical aspect of it of course. Guys
if I'm correct my seizures started out like petit-mal and intensified to
complex partial because of just that, dwelling on it almost 24/7 or most of
the day when I awake I'll say or state (MISTAKE THAT IS). 🙋

January 24
MyEpilepsyTeam

How do you balance your own perspective on your epilepsy with medical advice and others' opinions?

It sounds like you've found a healthy balance that works for you. Being open about your epilepsy while maintaining control over when and how you discuss it shows real self-awareness.

Your approach of listening to your medical Show Full Answer

How do you balance your own perspective on your epilepsy with medical advice and others' opinions?

It sounds like you've found a healthy balance that works for you. Being open about your epilepsy while maintaining control over when and how you discuss it shows real self-awareness.

Your approach of listening to your medical team while also trusting your own understanding of your condition is actually ideal. You're the expert on how epilepsy affects your daily life, while your doctor provides the clinical expertise.

Many MyEpilepsyTeam members share similar feelings about accepting where they are now versus their younger years. One member put it perfectly: "I'm not hiding my condition anymore. If I'm tired, I'm going to rest."

Key points about managing your perspective:

- Partnering with your healthcare provider for treatment decisions is essential
- Your personal experience with epilepsy is valuable and valid
- Being comfortable discussing your condition at your own discretion is empowering
- Accepting changes over time without shame shows healthy adaptation

It's completely normal to feel differently about your health now than in younger years. What matters most is that you're comfortable with where you are and maintaining the care you need.

January 24
A MyEpilepsyTeam Member

I used to then found I was better off doing my own research and taking control of my own health. I learned the keto diet was used in other countries to treat epilepsy so I took it upon myself to follow it and my 34 years of grand mal - clonic/tonic seizures became absences after 1 year of taking away carbs and cooking with good fats. I wasn’t told until I was 37, I hit my head on the wall when I was 2 and sure enough after a series of tests that’s what caused scar tissue on my right tempro lobe and caused my 36 years of seizures. I had a right temprolobectomy in 2018, still follow the keto diet and have been seizure free 7 years and 5 months now. Our medical system will keep adding more and more pills and keep putting a band aid on it but never cure it or even try to do that. They don’t make $ when people get cured so it’s best to do your own research and help yourself. I got better when I quit letting the medical system keep me down.

January 24
A MyEpilepsyTeam Member

90% of the people / friends I talk to are either an MD or other in healthcare.

January 25

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