And other people's opinions about it, I think I do myself but do take into consideration what they say especially the medical system and my doc, I do take people's opinions I happen to discuss about my condition I have at my call or anything else dealing with my health overall in my life with, I am ok with doing that at my discretion and if I feel like it, I am not ashamed of my condition I have and my overall health currently, but I think my health overall including my condition is ok with me… read more
I follow my doctor's recommendations, but I am so lucky because he and I agree on my treatment. I do occasionally go down rabbit holes on the internet, but I realize I need to stop and I start finding pictures of cute kittens.
Dwelling on your physical faults doesn't do an individual a bit.of good my
friends. All mankind has faults, BOTH PHYSICAL & PSYCHOLOGICAL. I've had a
tendency to do just that and it's worsened my sickness 10x worse etc...
I've beared my sickness(Epilepsy)since I was a youngster but wasn't
diagnosed until I graduated from college. Hey my physical issues
coordinating with my disability led to psychological effects that are
gruesome. My friends it may originate to a physical fault but
psychologically it will intensify the physical aspect of it of course. Guys
if I'm correct my seizures started out like petit-mal and intensified to
complex partial because of just that, dwelling on it almost 24/7 or most of
the day when I awake I'll say or state (MISTAKE THAT IS). 🙋
How do you balance your own perspective on your epilepsy with medical advice and others' opinions?
It sounds like you've found a healthy balance that works for you. Being open about your epilepsy while maintaining control over when and how you discuss it shows real self-awareness.
Your approach of listening to your medical Show Full Answer
I used to then found I was better off doing my own research and taking control of my own health. I learned the keto diet was used in other countries to treat epilepsy so I took it upon myself to follow it and my 34 years of grand mal - clonic/tonic seizures became absences after 1 year of taking away carbs and cooking with good fats. I wasn’t told until I was 37, I hit my head on the wall when I was 2 and sure enough after a series of tests that’s what caused scar tissue on my right tempro lobe and caused my 36 years of seizures. I had a right temprolobectomy in 2018, still follow the keto diet and have been seizure free 7 years and 5 months now. Our medical system will keep adding more and more pills and keep putting a band aid on it but never cure it or even try to do that. They don’t make $ when people get cured so it’s best to do your own research and help yourself. I got better when I quit letting the medical system keep me down.
90% of the people / friends I talk to are either an MD or other in healthcare.