I had a bad seizure yesterday morning and bit my lip really badly. I emailed my epilepsy nurse to let her know as she is tracking them to see if there is a pattern. I was trying to explain that I had the normal de ja vu feeling I always get and this feeling of everything being a bit surreal almost. Its so strong though, its not a gradual feeling, its like suddenly a switch is put on and that feeling is just suddenly intense. Its just so hard to describe to someone.
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Members opened up about how they experience seizure warnings, sharing that auras feel very different from person to person, ranging from a... Read more
The worst is waking up and not knowing what happened, in other words, you had a "black-out" seizure.
Its interesting to hear everyone's experiences before and after a seizure. Ive always had that weird feeling before a seizure. Its just hard to explain it to someone. Thats why I kept it secret for so many years until I had a tonic clonic seizure.
I NEVER know when seizures occur unless someone tells me
If I'm alone it may take a while for me to feel safe/ ok to be at home (don't know how long)🤷🏾♀️🙏🏿🙏🏿
I get a intense feeling like I know something bad is going to happen that I can't stop then I start going into the epilepsy yell then I wake up and very emotional because I know what happened
I get a stomach ache and a headache or a migraine right before. And at times I start cleaning like a mad man. I’m told that I get nasty before that I don’t realize.