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A MyEpilepsyTeam Member asked a question 💭
Denver, CO

I’m putting some info together to understand this better. The more descriptive, the better! Thank you.

September 25, 2023
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Answer Summary

Members responded in detail to the question of how it feels to wake up after a seizure, sharing a wide range of physical and emotional... Read more

Members responded in detail to the question of how it feels to wake up after a seizure, sharing a wide range of physical and emotional experiences. Several members described feeling deeply confused, dreamlike, dizzy, or exhausted, with recovery ranging from seconds for minor seizures to several days for tonic-clonic episodes, and many mentioned bladder loss and tongue biting as common aftereffects. A recurring theme was not knowing a seizure had happened at all without a witness, and the frustration of unwanted ambulance calls when members felt they could recover safely at home.

A MyEpilepsyTeam Member

I have no idea, unless someone has witnessed me having a full seizure because they are always followed by a complex partial seizure. The only time that I know that I have had a seizure is if it was a simple partial seizure or someone witnessed one of the other types of seizures and tells me about it. It has been decades since I had a full seizure and woke up on the floor. And my complex partial seizures just continue to mutate. And I only have auras before simple partial seizures that happen while I am awake. I have no idea if I have any aura before the nocturnal seizures. On the bright side, I have been in a long-term seizure free state for a year and 5 months with even the worst level of anxiety and depression (during the last 2 years) not breaking that seizure-free state so far.

September 26, 2023
A MyEpilepsyTeam Member

Unknown Many times I don't I had a seizure unless things are moved to odd places or slight nip on my tongue.

September 25, 2023
A MyEpilepsyTeam Member

I had two questions running through my brain: where am I and what did I just do. Right away I realized where I was and then I kept quiet waiting for someone to tell me what they saw. Then I was usually embarrassed or surprised I was still alive.

September 25, 2023
A MyEpilepsyTeam Member

Well when I wake up from the seizure for around 5 minute I believe I'm dreaming and that none of this is happening, and eventually I remember and I'm like...Oh crap!
But the worst thing is when someone who doesn't know what is happening calls an ambulance and I have to fight with the paramedics telling them I'll be fine. Nothing is worse than having to spend a week in a hospital after a seizure, it only worsens the depression, it's not like if I spend my time there I'll get better, at least in my case I know I'll only get one seizure not a cluster so there is no reason for hospital.

September 25, 2023 (edited)
A MyEpilepsyTeam Member

dad lookin all goofy. i have to ask what happened, all bummed up....

December 16, 2023

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