One of the anticonvulsants I take to control seizures is Phenobarbital in conjunction with Vimpat (Lacosamide) and there currently is a supply shortage of Phenobarbital until approximately March this year
I feel like I am in a dilemma, my only option is to go and see my doctor and hopefully my specialist to see if I can take a substitute, the problem is I am allergic to Dilantin (Phenytoin) and I have taken other anticonvulsants in the past that were ineffective. I’m see my doctor in a few… read more
Answer Summary
Members rallied around a community member facing a Phenobarbital shortage in Australia, offering encouragement and practical advice about... Read more
Thanks for your reply, I’ll have to discuss it with my Doctor/s
@A MyEpilepsyTeam Member Are you doing this Public or Private? Its just that if its private then you would need to contact whoever the firm is the Neurologist works through, but if its public it may be a lot harder. If you have a contact of a ESN that works with the Neurologist then that may work but other then that it can be a pain to contact them in the public system. Hopefully they flag it as a urgent issue.
Hi LoriHobgoodLewis,
Thanks for your advice, I intend to contact my epilepsy specialist on Monday and hopefully I can get it sorted.
Cheers
Jim 🤓
Good luck. This is a matter of urgency and the doctor must sort also. Be firm.
Really?? Can you not get the generic? This happened a few years ago with Tegretol just after I came off it.