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I’m able to do. I’m on the verge of requesting to be fitted for a wheelchair because of it. It’s a daily issue now for me.

December 18, 2025
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A MyEpilepsyTeam Member

Quinn I have read your previous posts throughout.
Do you get any sort of home help support that can assist you?
It sounds like you may have nerve damage and muscular atrophy because you're struggling to move?

December 18, 2025
A MyEpilepsyTeam Member

https://www.epilepsyva.com/
have you tried this foundation @A MyEpilepsyTeam Member?

THE EPILEPSY FOUNDATION OF VIRGINIA
THE EPILEPSY FOUNDATION OF VIRGINIA
December 18, 2025
A MyEpilepsyTeam Member

I hate to say this Quinn, but it can take months if not longer b4 u’ll be able to feel the difference. Some days are going to be really hard to the point where u just can’t push urself a step further. That’s when I have to sit down, massage my legs and try again. Lots of times I break down crying- not just from the pain but from the exhaustion and what it feel like is the lack of results that I feel or see. And the last thing I want to hear is U gotta stick with it, we know u can do it, don’t give up etc. All the ways they’ve been taught to say to motivate someone By the time I make it home on certain days, it’s all i can do to take off my jacket and shoes, hold onto walls and furniture and flop onto the bed. And that’s when I will totally break down. It’s a long difficult road and some days u probably won’t want to carry on Every inch of ur body will feel like u have no control over, u think that it’s doing more harm than good etc. But just like epilepsy, everyone is different, we start from different levels of injury or a medical condition. So is our healing journey. Best of luck to u Quinn and try not to think that ur only choice is to be in a wheelchair. That only makes the path to recovery longer and worse for our bodies, minds and souls. 🙏💜💜

December 18, 2025
A MyEpilepsyTeam Member

No but I do physical therapy Lombard spine and hips my s1 to my l5 is messed up which could make me lose the use of my legs.. I walk 5 days a week and I work out legs and arms

December 28, 2025
A MyEpilepsyTeam Member

Its more like yes some of sometime if feel them sleep

December 18, 2025

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