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Hello, I know Focal seizures rarely announce themselves. They slip in quietly, masquerading as distraction, but when I'm in the middle of one it feels like they are stealing time and memories from me in fragments. I recently tried to explain this to my doctor but was brushed off and told to seek Cognitive Stimulation Therapy vs undergoing additional testing. He explained that I would be put back on a driving restriction, which I was willing to do in order to get more answers. I've been going to… read more
Find a doctor who will help you personally. That is exactly what I need to do, as some side effects from meds hit some epileptics a little harder.
There is a supplement for memory that may help, I think it's called Prevgin (sp)
As epileptics we can be so similar AND/OR so different. And for me personally it is definitely the meds. The very best I’ve felt since I started meds over 30 years ago? That was after the only 30 consecutive days when I took no medicine. And that was 2 weeks after my brain surgery - when I simply felt fantastic. That’s why I was so shocked when the doctor told me I still had epilepsy and would have to restart taking medication. Though I do have far less seizures, the side effects are still here and they’re simply a little deeper. That may because mine is the left temporal lobe.
Both!
I'm skeptical about these made-for-television memory product ads. I think my epileptologist would recommend this if he thought it would be beneficial, especially since I complain about my memory issues at every visit.
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