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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I am wondering how many of you have pursued counseling/therapy to deal with things?

A MyEpilepsyTeam Member asked a question in Growing Older (65+) group 💭
Reading, PA

I am newly diagnosed 66-year-old with bilateral TLE.I’ve never gone to counseling, although I probably should have… I am married for 46 years after all! Feeling so many kinds of emotions, back-and-forth, not sure what is normal reaction to a new diagnosis or new meds. Probably a combination.

February 9
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Reactions
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , I began having verbal tics in 2019 & don’t know why. It’s caused a lot of frustration sometimes & I’ve had about 4 emotional breakdowns. My regular Neurologist has me seeing a special Neurologist for my verbal tics & they wanted me to see a Psychologist I think & use cognitive behavioral therapy. I’ve seen 2 or 3 counselors. Money has been tight & so I stopped looking for a counselor who helps specifically with verbal tics therapy but when I do start looking again, that’s what I will look for. If you feel the need for counseling then look into it. Maybe they can help guide you with your emotions. Your local Epilepsy Foundation likely offers support groups, events, programs & a variety of resources. You can look up your local Epilepsy Foundation at www.epilepsy.com. Sending Thoughts, Hugs, Smiles & Prayers. 🤗💜🙏🤗 Your friend in Texas, Becky

https://www.epilepsy.com
https://www.epilepsy.com
February 9 (edited)
A MyEpilepsyTeam Member

I have tried therapy, but for me personally, this group here at MyTherapyTeam as well as trying out an Epilepsy Support Group (through the epilepsy society of San Diego website) has really helped me much more 💕

February 9
A MyEpilepsyTeam Member

Thank you! 😊

February 9
A MyEpilepsyTeam Member

Good post, I agree with the ai mentioned about it, I have had that happen also but I go about it with my own way, I have my daily routine of prayer and Bible study I put in my life with and does me good, you can get other people's opinions here which is ok and then go to your doc also about it and go from there about it and good luck with your search and outcome with the post here, my opinion amen

February 9
MyEpilepsyTeam

How can counseling help with adjusting to a new epilepsy diagnosis and managing the emotional impact?

What you're feeling is completely normal. The mix of emotions you're experiencing after a new diagnosis is a common reaction, and it can be hard to separate what's from the diagnosis itself versus medication adjustments.

Many Show Full Answer

How can counseling help with adjusting to a new epilepsy diagnosis and managing the emotional impact?

What you're feeling is completely normal. The mix of emotions you're experiencing after a new diagnosis is a common reaction, and it can be hard to separate what's from the diagnosis itself versus medication adjustments.

Many people with epilepsy find counseling helpful, especially when dealing with the stress and life changes that come with the condition. A therapist can help you work through specific challenges, like setting boundaries with family members or navigating difficult interactions that epilepsy might complicate.

The emotional impact of epilepsy can affect relationships, activities you enjoy, and many areas of life. Professional support can provide concrete tools to address these changes.

It's also worth noting that sometimes depression or anxiety can develop gradually, and you might not realize how strong those feelings have become. Recognizing when you need professional evaluation is important, especially since even mild symptoms can affect how well you manage your epilepsy treatment.

The first years with epilepsy are often the most challenging as you adjust to medications and learn your triggers. Taking time to process everything and seeking support when you need it are both signs of strength, not weakness.

February 9

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