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A MyEpilepsyTeam Member asked a question 💭
Brotmanville, NJ
December 5, 2025
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A MyEpilepsyTeam Member

Good post, I agree with the ai mentioned about and other people's opinions here, I think it's dif per person, and I have that happen on occasion but I learned that I have emotions and I have my condition I have accepted in my life with, it's more stable than before and it does have its moments with, but as for my emotions I have also I let them out as they come about to me, I am not ashamed of doing that, I cry at certain times when it happens but I don't mind that or any other emotions that come about at that time and moment, I look at it like this, it' takes more of a person to show themselves authentically than to hide behind their true feelings and not show them, my opinion here I hang in there and try to stay pos no matter what, and I am especially thankful for my daily routine I have of prayer and Bible study I do and believe in, I am a Catholic Christian mix and I am not perfect and do sin, but I stand firm in my life with and my faith in God and the Lord Jesus Christ and the holy Spirit of Abraham always, my answer here, amen to that!

December 6, 2025 (edited)
A MyEpilepsyTeam Member

Well, I probably have a different reason for it but when I had my temporal lobectomy and had my amygdala removed, I went from a person who never cried to someone who cried about everything. I just tell everyone even though I once had the best you could find, I don't have a control panel for my emotions anymore so get used to it.

December 5, 2025
MyEpilepsyTeam

How can you help your family understand that uncontrollable crying is a symptom of epilepsy and not within your control?

Using "I" statements can be a powerful way to communicate directly about what you're experiencing. This approach helps you express your feelings clearly while taking responsibility for your needs without Show Full Answer

How can you help your family understand that uncontrollable crying is a symptom of epilepsy and not within your control?

Using "I" statements can be a powerful way to communicate directly about what you're experiencing. This approach helps you express your feelings clearly while taking responsibility for your needs without blaming anyone.

You might try phrases like:
- "I'm experiencing uncontrollable crying as part of my epilepsy symptoms"
- "This is really hard right now, and I need you to understand this isn't something I can control"
- "I need your support while I'm going through this"

Being upfront about your symptoms helps avoid misunderstandings. Many people don't realize that epilepsy can cause emotional symptoms beyond just seizures. Explaining that crying episodes are part of your condition—not your personality or mood—can help your family respond with more understanding and less concern.

Consider bringing educational materials about epilepsy to the conversation. Having resources available can help your family better understand the full range of symptoms you experience, including emotional ones that might seem unusual to them.

Remember to give your family time to process this information. Answer their questions patiently, and be clear about what kind of support would be most helpful to you during these episodes.

December 5, 2025

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