For Randy .. this be William ., husband of Jen .. thank you for hoping I be better ., often I be quite sick .. my neurologist today tell me a new diagnosus of CIRE.. Cold-induced Refiex Epilepsy .. a rare form with focal aware seizures brought on by cold temps .. going from hot to cold like fever I be having with the pleurisy .. even changes in weather! Causes me to shiver and shake with chills and rigours and teeth chatter .. because my LTL brain cannot regulate the temperature in me ., this be 4 diagnoses now I be having ., all rare he say .. no cure, no treatment for this one .. , just avoid cold 😨.. at least these seizures be just annoying and not be stopping my heart like the awful noctutnal seizures from my ictal asystole do 😢 ., so we be thankful for that.. Jen and me asppreciate your kind words ., we send to you hugs and prayers with quiet love.. your Michigan friends .. William and Jen🤗💜💙🕊

I Have Medical Transportation To Take Me To & From All Doctor Appointments. Access-A-Ride Is For Wherever Else I Need & Wanna Go In The 5 Boroughs Of NYC 24/7.

Thanks for all the wonderful responses!! I am glad to know everyone gets the help they need. I'm usually able to get where I need to go. @A MyEpilepsyTeam Member I have not let epilepsy rule my life in a long time, and just about everyone I know knows I have epilepsy because I have no filters and tend toward too much information. 🤣😂

Mentioned Users

A MyEpile...

I don’t drive for that fear of hurting anyone. I use to know someone who did. He ended up in jail

The few different places I’ve lived at were all different .
I lived at place where I got to know the neighbors well and was able to get assistance or help when I needed them.

Then there were the other places where the neighbors kept to themselves , so I wasn’t blessed to know them well enough to ask for any help.