How do you handle concerts with flashing lights? I want to go to more and I have had 2 EEGs with no reaction to lights but going to them and have g th flash for long periods make me nervous.
I live in Las Vegas, Nevada, which some might call 'neon city.' Though I rarely hit The Strip, I have. Fortunately I don't have photogenic epilepsy, I still might close my eyes on occasion.
If its confirmed that the Occipital lobe is not affected then light should not set of seizures. You may find you are sensitive to it but unless this is the case then it should be fine. I've had TLE for years and never had any issues.
How can you safely enjoy concerts with flashing lights when you have epilepsy?
It's great that your EEGs showed no reaction to lights, but being cautious is smart. Even without photosensitivity, prolonged exposure to flashing lights at concerts can still feel overwhelming.
Here are some strategies to make concerts safer:
Unfortunately, between the flashing lights and loud beat, i cannot go to a rock or pop concert like I used to years ago. But I am able to go to classical and jazz and even a quieter pop in a smaller venue. The sound level and percussion are key for me.
I am not photosensitive either, but I also feel, why should I tempt fate? I cover my eyes when the lights start flashing.