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A MyEpilepsyTeam Member asked a question 💭
Deal, UK

I have been getting confused alot especially after having a sleep, I forget what day it is, or any plans I have to recover, I look at my mobile phone.

October 3, 2025
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Answer Summary

Members responded warmly to the question about confusion and memory loss with epilepsy, with nearly everyone confirming they experience... Read more

Members responded warmly to the question about confusion and memory loss with epilepsy, with nearly everyone confirming they experience similar struggles like forgetting the day, losing words mid-sentence, and feeling disoriented after sleep or seizures. Several members shared helpful coping strategies including writing things down, using calendars and diaries, playing memory games like Mahjong and Scrabble, and doing puzzles to keep the mind active. A recurring theme was the connection between sleep quality, medication side effects, and worsening confusion, with some members finding relief after being diagnosed with sleep apnea and starting CPAP therapy.

MyEpilepsyTeam

Yes, confusion and memory issues are very common with epilepsy. Up to 70% of people with epilepsy experience some form of cognitive impairment, which can affect your ability to remember things and make decisions. This confusion can be especially noticeable in the minutes or hours following a seizure.

Several factors can Show Full Answer

Yes, confusion and memory issues are very common with epilepsy. Up to 70% of people with epilepsy experience some form of cognitive impairment, which can affect your ability to remember things and make decisions. This confusion can be especially noticeable in the minutes or hours following a seizure.

Several factors can contribute to confusion:
• Direct effects of epilepsy on brain areas controlling cognition
• Post-seizure recovery period
• Side effects from antiepileptic medications
• Changes in daily routines Here are some helpful strategies to manage confusion:
• Write down important information after conversations
• Use your phone's calendar to track appointments and daily plans
• Keep a consistent daily routine when possible
• Talk to your doctor if medication side effects are significantly impacting your memory or alertness
• Never change your medication schedule without consulting your healthcare provider

Remember that while these memory and confusion challenges can be frustrating, they are a normal part of living with epilepsy and can often be managed with the right strategies.

October 3, 2025
A MyEpilepsyTeam Member

I find the less you do something like writing or spelling words, the more mistakes you make due to memory loss, thats why I play scrabble daily to try and help.

December 12, 2025
A MyEpilepsyTeam Member

Yes,on occasion it does happen, but I don't let it get to me when it comes about, not like before, I hang in there and try to stay positive and so can you, my opinion

October 3, 2025
A MyEpilepsyTeam Member

Recently moderate sleep apnea! Brother , I need to loose weight and I had no more symptoms!

October 13, 2025
A MyEpilepsyTeam Member

While growing up as a young boy I could remember everything. And I still can remember stuff from the 80s. (Like how I would get that funny feeling every now and then. I thought it was part of life - turned out to be seizures.) But immediately after I took medicine for the epilepsy, I felt a little different. I have far less seizures but my memory has been hit very hard - along with other side effects.

October 9, 2025

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