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Pretty much listed on both of them so for maybe one or two from the other. What are these prescriptions I’ve been on since like 2006 so I doubt it’s coming from that one but the other I’ve only been on since like January of last year so I’m wondering if all these are coming from the newest one instead of the older one side effects I’m feeling the most are fatigue weakness in the legs, coughing, sore throat every once in a while itching on the skin. It’s a wonder. I feel like I should be in a… read more

September 18, 2025
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A MyEpilepsyTeam Member

Quinn, I have replied to you on several occasions. As a team member, who, thinks of you as a friend, it pains me to see what you continue to go through. I Desperately Want You To Feel Better, No More Unsolicitive Advice. GET A DIFFERENT
NEUROLOGIST PLEASE.

September 18, 2025
A MyEpilepsyTeam Member

Not good, seems like your side effects could be from the new meds or maybe the interaction of the two meds but you definitely need to ask a neurologist about this and if your not getting any answers get a new neurologist, there are others out there. No reason to experience what you're experiencing.

September 19, 2025
MyEpilepsyTeam

Question: How should I handle severe medication side effects when my neurologist isn't addressing my concerns?

The side effects you're experiencing - particularly fatigue, weakness, and skin issues - are common with anti-seizure medications. However, when these symptoms significantly impact your quality of life, they need to Show Full Answer

Question: How should I handle severe medication side effects when my neurologist isn't addressing my concerns?

The side effects you're experiencing - particularly fatigue, weakness, and skin issues - are common with anti-seizure medications. However, when these symptoms significantly impact your quality of life, they need to be addressed. Many MyEpilepsyTeam members have found relief through medication adjustments, even small ones. For example, some have seen improvements with just slight dosage modifications. Since your neurologist isn't responding to your concerns, here are some recommended next steps:

• Seek a second opinion from another neurologist
• Keep a detailed log of your side effects and their severity
• Don't stop or adjust medications on your own, as this can be dangerous
• Consider requesting hormone testing or other evaluations to rule out other factors
• Ask about alternative medication options or dosing schedules

Remember, epilepsy treatment should improve your quality of life, not severely diminish it. You deserve to have your concerns taken seriously and addressed properly.

September 18, 2025
A MyEpilepsyTeam Member

I agree with JoiF. I’ve been saying it over and over, and I still think u might benefit from seeing a different gp even if it’s just for a second opinion

September 19, 2025
A MyEpilepsyTeam Member

Rhondaschnee after having surgery on my left foot do to braking a bone in it the hospital I had it at I absolutely loved i’ve already looked to see if there are neurologist in that location to treat my two conditions and there’s one that is listed. I’m gonna check into. With my current gp retiring at the end of this year. I’ve already been referred to another one. I’m not due to see him until next February.

September 19, 2025 (edited)

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London, UK