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work. I’m not convinced that that’s it. I think it happens to do with other symptoms that I may be experiencing due to what I have to take. I can’t convince them that’s what it is. I’ve tried so many times I’ve lost count. I don’t know what else to do.

October 19, 2024
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Answer Summary

Members rallied around a person whose family blamed weight gain for their fatigue, with the community strongly affirming that epilepsy... Read more

Members rallied around a person whose family blamed weight gain for their fatigue, with the community strongly affirming that epilepsy medications are a well-known cause of fatigue, weight changes, and many other symptoms regardless of how long someone has been on them. Several members shared personal experiences with medication side effects, including weight gain from various seizure drugs, and encouraged looking up official side effect information to help make the case to skeptical family members. A recurring theme was that family members often don't understand what they cannot see, but that trusting your own body, staying positive, and leaning on this community and your medical team matters most.

A MyEpilepsyTeam Member

Fatigue can also come from side effects of the medication you are taking. It is important to know what the side effects of all your meds.

October 19, 2024
A MyEpilepsyTeam Member

almost all seizure meds include dizzy, sleepy/lack of sleep, fatigue, gain/loss weight, ect.
the frustration is real. tell me, dose your family go to any of your appt? any test and treatments? chance are no.
my advice... trust your gut feeling. and research your meds. chance are you get some other side effect that mimics fatigue.

October 19, 2024
A MyEpilepsyTeam Member

You can’t let family members put you in a negative mood. They should get some counseling from the epilepsy association near them. Take one breath at a time. They don’t know what a seizure feels like or how it affects your body.

October 20, 2024
A MyEpilepsyTeam Member

Quinn, I am sorry your family is giving you so much grief. Everyone else has said it better, but hang in there and know I am thinking of you.

October 20, 2024
A MyEpilepsyTeam Member

Hang in there and don't let them drag you down. research the med effects with fact sheet you are given when you pick up meds Or do it online. this site has the resource you need.. ericthom3

October 19, 2024

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