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I had my first gran mal seizure 6 weeks after my first injection then another seizure 8 weeks after my second injection. I had another a few months later.
I was put on epilepsy medication as I have had none since although I am now on medication for life, needless to say I have refused to have to have anymore covid injections.

September 16, 2025
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A MyEpilepsyTeam Member

Thank you

September 16, 2025
A MyEpilepsyTeam Member

There has been cases of people developing neurological conditions after having it but as of now they still have no idea how the two are linked.

September 16, 2025
A MyEpilepsyTeam Member

In the UK I have spoken to people who have known something similar to happen to people they have known. I can honestly say I will never have a booster. I actually caught covid when I was in isolation in hospital with an unrelated problem.

September 16, 2025
A MyEpilepsyTeam Member

It sounds like your AED med cant keep your seizure fully controlled when the Covid is injected into your blood stream. Your AED meds are also going thru the same blood stream . Your meds lost their strength after the Covid Vaccine

September 16, 2025
MyEpilepsyTeam

While the search results don't specifically address COVID-19 vaccines and seizures, it's important to understand that various medications and medical interventions can potentially trigger seizures in some individuals. When experiencing new-onset seizures, it's crucial to work closely with healthcare providers to determine Show Full Answer

While the search results don't specifically address COVID-19 vaccines and seizures, it's important to understand that various medications and medical interventions can potentially trigger seizures in some individuals. When experiencing new-onset seizures, it's crucial to work closely with healthcare providers to determine the underlying cause and appropriate treatment plan.

The fact that you haven't had any seizures since starting epilepsy medication is a positive sign that your condition is being managed effectively. This is the primary goal of anti-epileptic medications - to prevent future seizures and maintain quality of life. For anyone experiencing seizures, regardless of potential triggers, some key safety measures include:

• Staying well-hydrated
• Getting adequate rest
• Keeping rescue medications on hand
• Maintaining regular contact with your healthcare provider
• Immediately reporting any breakthrough seizures
• Never stopping prescribed anti-epileptic medications without medical supervision

Any decisions about future medical treatments or vaccinations should be made in consultation with your neurologist and primary care physician, who understand your complete medical history.

September 16, 2025

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