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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Turlock, CA

I was traveling in Europe and Asia in December of 2019. In mid January 2020 I had my first grand mal seizure. I have had 2 additional since then. All my COVID tests have been negative and and I since been vaccinated. We can’t find any other trigger and I have heard about long lasting issues related to COVID infections even after testing negative.

April 2, 2021
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A MyEpilepsyTeam Member

I have generalized epilepsy but hadn't had a seizure for almost 3 years then I had 2 breakthrough ones last weekend, 2 days later I tested positive for Covid 19. I've been searching Google to find any info on a link between the two but doesn't look like there's been much research into it at all so far!

July 2, 2021
A MyEpilepsyTeam Member

OMG I need to read things bit slower I think, sorry for thinking it said injection when it definitely does say infection, going to blame my seizures for that one.
I haven’t heard of anyone having seizures caused by the virus but as one of things you get is very high temperature so maybe it could. Hope your well, stay safe xxx

April 6, 2021
A MyEpilepsyTeam Member

I haven't heard anything. But will check around. 👍🏾

April 2, 2021
A MyEpilepsyTeam Member

I was not asking about the vaccine. My experience and my neurologist both say it is safe and does not cause seizure. I encourage everyone to get a Covid 19 vaccination. My question was about long term effect (long haul) after someone is testing negative. There have been cases of long term health effects. I was asking if anyone experienced seizures as being one of them.

April 4, 2021
A MyEpilepsyTeam Member

Yes I have heard about that , my daughter In Law works at the hospital , and has begging not to take one , because of what she has seen , so I am afraid to take one , I don't want and more of these things

April 3, 2021

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