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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

In February I experienced status epilepticus lasting more than 3 days.

A MyEpilepsyTeam Subscriber asked a question 💭

After 2 days my husband was told to come see me as I was expected to die. Since waking up my depression and anxiety have been much more severe. I frequently wish I had not come out of it. My memory is very inconsistent. I have had some vision problems. I'm not coping very well
Adding apixaban to my anticonvulsant seems to be the cause. I am now using warfarin and have been seizure free for 5 months. I need someone to come in and help me with everything. I forget to take both those… read more

August 14, 2025
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A MyEpilepsyTeam Member

Hmmm, It could also be that your not completely seizure free and there's still a lot of activity going on. There only way to confirm would be a eeg. I went through all this two years ago then had to do it again last year just to confirm it.

August 14, 2025
MyEpilepsyTeam

Status epilepticus is indeed a serious medical emergency that can be life-threatening. It's completely understandable to be struggling with depression and anxiety after such a traumatic experience. The feelings you're experiencing, including memory issues and difficulty coping, are valid responses to what you've been Show Full Answer

Status epilepticus is indeed a serious medical emergency that can be life-threatening. It's completely understandable to be struggling with depression and anxiety after such a traumatic experience. The feelings you're experiencing, including memory issues and difficulty coping, are valid responses to what you've been through. Cognitive behavioral therapy has been shown to help manage both seizure-related anxiety and depression.

Given the severity of your situation and medication management challenges, it would be wise to:
• Discuss your mental health concerns with your neurologist
• Ask about a referral for cognitive behavioral therapy
• Consider using medication reminder apps or alarms
• Look into home healthcare assistance for medication management
• Have regular check-ins with family members or caregivers Many people experience a range of emotions after serious seizure events, from denial to anger to depression. Finding support through family, friends, and healthcare providers is crucial during this adjustment period. While you've achieved 5 months seizure-free, which is positive progress, it's important to prioritize both your physical and emotional recovery. Don't hesitate to ask for the help you need - whether it's with medication management, daily tasks, or emotional support.

August 14, 2025
A MyEpilepsyTeam Member

Good post and? I agree with with the ai mentioned about and others opinions here also, I would get other people's opinions here which is ok with that and then go to your doc about the situation and condition you have at hand and go from there about it, and good luck with your condition and situation at hand and good luck with your outcome with it, my opinion hang in there and try to stay pos, I do and so can you, my opinion here

August 15, 2025

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