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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I am having an INCREDIBLY DIFFICULT TIME leaving the house due to my epilepsy and PTSD. You wouldn’t believe me if I told you how long it has been since I left the house. I spend a lot of time outside gardening but won’t go anywhere
Part of it is the traumatic experiences I have experienced when having a seizure while out without someone I know well enough to handle the situation with compassion and kindness.
I have been in over 50 emergency rooms and it’s not fun.

If you are experiencing… read more

August 2, 2025
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A MyEpilepsyTeam Member

Thank you Becky!

August 3, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , Your local Epilepsy Foundation might offer online meetings or programs that you could participate in. They might offer online support groups & you could get to know others with Epilepsy. You can look up your local Epilepsy Foundation at www.epilepsy.com. They might also offer a counselor like mine does. I visited with my local Epilepsy Foundation’s counselor by FaceTime one time. I pray things get better for you. But don’t hesitate to contact your local Epilepsy Foundation about things they might offer virtually, like online, by Zoom or however you want to describe it. My local Epilepsy Foundation offers support groups & programs by Zoom & I have participated in some. The Epilepsy Foundation offers things like support groups, events, programs & different types of resources. I hope this information helps you some. Take care. Your friend in Texas, Becky

https://www.epilepsy.com
August 3, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
Things have been the exact same way for me all of my life. I have had epilepsy ever since I was 10 years old. I am now in my 40’s and not only can I not drive but I can’t walk or ride a bicycle either. I’ve had a seizure and been found laying on the street while walking and I’ve had a seizure and ridden a bicycle into a barbed wire fence. So I cannot leave the house unless my parents take me.

August 2, 2025
MyEpilepsyTeam

It's completely understandable to feel anxious about going out after traumatic experiences with seizures. While gardening is a wonderful activity, taking small steps to expand your comfort zone can help rebuild confidence. Many people with epilepsy have found that building a support network and having a reliable Show Full Answer

It's completely understandable to feel anxious about going out after traumatic experiences with seizures. While gardening is a wonderful activity, taking small steps to expand your comfort zone can help rebuild confidence. Many people with epilepsy have found that building a support network and having a reliable transportation plan helps them regain independence.

Here are some practical steps to consider:
• Start with very short outings to low-stress destinations
• Use ride-sharing services or public transportation when you feel ready
• Bring a medical ID and seizure action plan
• Consider connecting with a local epilepsy support group for in-person meetups
• Ask trusted friends or family to accompany you on outings initially Many MyEpilepsyTeam members have shared that while losing driving privileges impacts their independence, they've found creative solutions. Some use a combination of public transit and ride-sharing apps, while others coordinate regular outings with friends and family. Remember that rebuilding social connections takes time - it's okay to progress at your own pace while prioritizing your safety and comfort level.

August 2, 2025
A MyEpilepsyTeam Member

Go to church and see other people in your community.

August 5, 2025

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