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what so ever. I have a lot of days like this anymore.

July 16, 2025
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MyEpilepsyTeam

Question: How can I cope with difficult mornings and ongoing fatigue with epilepsy?

Many people with epilepsy experience challenging mornings and persistent fatigue. These symptoms can be particularly frustrating when they continue even after trying to refresh yourself through normal morning routines. One helpful approach is Show Full Answer

Question: How can I cope with difficult mornings and ongoing fatigue with epilepsy?

Many people with epilepsy experience challenging mornings and persistent fatigue. These symptoms can be particularly frustrating when they continue even after trying to refresh yourself through normal morning routines. One helpful approach is to practice self-compassion during these difficult moments. Consider:

- Taking things at your own pace
- Giving yourself extra time in the morning
- Resting when needed
- Speaking to your healthcare provider about your fatigue symptoms, as they may be able to adjust medications or suggest management strategies

Remember that experiencing these challenging days is a common part of living with epilepsy - you're not alone in this experience.

July 16, 2025
A MyEpilepsyTeam Member

Quinn, Self compassion is a good idea. I’m a procrastinator. When I actually do some thing and get it done, I give myself a pat on the back you might want to try that it seems like a small thing but it makes me feel better. In addition, and I’ve mentioned this before, since you’re not getting the help, from your doctors, Again unsolicited advice, maybe try therapy.?
I have been in and out of therapy since I was eight. The mind and body work together, since your body is not working the way you want it to, it’s frustrating you, right there is a connection. I wish I had another piece of advice for you, but from my almost 58 The last 19 years of my life,,have been like one greater power, saying
“Here you go, Jol, we don’t think the 30 years of ulcerative colitis was enough. So now out of nowhere, we’re going to give you epilepsy.” “ Oh, I forgot. We’re also going to make you drug resistant, and give you memory deficits you will have for the rest of your life. Enjoy. You’re welcome.” That’s what goes through My head. And therapy has been helping me deal with that. I believe I put all of that in my story, but there I go again forgetting. Yet, therapy has helped. I still have a ways to go. But if it wasn’t for therapy, along with the newest drug, my “saving grace,” Xcopri, I would’ve tried to commit suicide more than two times. The food at behavioral hospitals alone, yuck ,helps too (lol). Their whispering,
“They are psychotic, they won’t know the difference.” Sorry for my strange humor unless you enjoy it. But getting back on topic, therapy may help you I mentioned this before and I will again. If you do decide to take this route, look for a LCSW. If you don’t find an LCSW then look for a psychologist. They will interact with you. What I think is a last resort, is a psychiatrist I believe they only wanna give you medication. Also. I would start looking at psychology today’s site and most importantly, if you do find someone but don’t Feel comfortable with the person., There are others, I like to say click with that person. Advise definition is you can talk with this person about
ANYTHING. This is long! I’m gonna stop. We all care about you Quinn. Take or leave this unsolicited advice. I hope and pray you feel better.
Jolene

July 16, 2025
Hi, this is just a check-in, based on a phrase you mentioned. If you — or anyone else who sees this — is thinking about self-harm, we want to say that you are an important part of this community. No part of this is easy, but there is support that can help. Read more >
A MyEpilepsyTeam Member

I have found taking Xcopri now I have no energy some days. It drains certain nutrients from me. My body is a little low in sodium. I also need an electrolyte boost.
I use a drink called IV hydration.

July 18, 2025
A MyEpilepsyTeam Member

Susan that’s never been an issue for me.

July 17, 2025
A MyEpilepsyTeam Member

Make sure your vitamin D doesn't get low. That will do it every time!

July 17, 2025

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