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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
New Jersey City, NJ
June 2, 2025
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A MyEpilepsyTeam Member

I had a really hard time getting SSDI. First I applied b/c of Epilepsy and was denied. The I tried with Epilepsy and Rheumatoid Arthritis (got that in Spring 2023) and was denied. Then I tried Epilepsy, RA, and I had a stroke. With the 3rd time you get a judge and they present your case. This time I got it.

June 9, 2025
A MyEpilepsyTeam Member

I've been on SSDI for over 25 years. During that time, I've a few jobs (all of them were part-time). I'm getting married this summer to a woman who is the CEO and president of a company that provides housing for the indigent. I help her write speeches and go on business trips with her (she gets nervous when giving public speeches, but I have almost 40 years of experience in public speaking).

June 2, 2025
A MyEpilepsyTeam Member

Εδώ στην Ελλάδα δεν δίνουν

June 2, 2025
A MyEpilepsyTeam Member

I have been on disability since I have been 18 months old and I am 41 years old

June 2, 2025
MyEpilepsyTeam

"Can I get disability benefits for Juvenile Myoclonic Epilepsy (JME)?"

Yes, people with JME can qualify for disability benefits if their condition limits their ability to work. In the United States, there are two main programs
- Social Security Disability Insurance (SSDI)
- Supplemental Security Income (SSI) Several Show Full Answer

"Can I get disability benefits for Juvenile Myoclonic Epilepsy (JME)?"

Yes, people with JME can qualify for disability benefits if their condition limits their ability to work. In the United States, there are two main programs:
- Social Security Disability Insurance (SSDI)
- Supplemental Security Income (SSI) Several MyEpilepsyTeam members have shared their experiences with getting disability benefits. Key tips include:
- Having your doctors clearly document how JME affects your ability to work
- Considering working with a lawyer to help with the application process
- Being thorough in explaining how the condition impacts your daily life
- Being persistent if initially denied - appeals are possible JME typically requires lifelong treatment and can significantly impact daily activities. When symptoms like myoclonic seizures and generalized tonic-clonic seizures make it impossible to maintain employment, disability benefits can help replace lost income.

June 2, 2025

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