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Condition currently and could get all together to see your current status and have a say 1 hr discussion about the progress with your condition today since being diagnosed with would you be interested in doing it, wondering, I think I would, I know that my condition is more stable than before and such etc, not a cure for yet, but I am ok with that and not complaining about it, It does have it's moments but I am have learned quite a bit since being diagnosed with my condition at hand, from the… read more

April 6, 2025
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MyEpilepsyTeam

Having a comprehensive review meeting with all healthcare providers who have been involved in your epilepsy journey could be very valuable. This type of discussion could help ensure everyone understands your complete medical history and current status, leading to better coordinated care.

Understanding how your seizure Show Full Answer

Having a comprehensive review meeting with all healthcare providers who have been involved in your epilepsy journey could be very valuable. This type of discussion could help ensure everyone understands your complete medical history and current status, leading to better coordinated care.

Understanding how your seizure management has evolved since diagnosis is an important part of your healthcare journey. It's encouraging to hear that your condition has become more stable, even though there isn't a cure. Your positive attitude about learning and adapting to life with epilepsy is admirable. To make such a meeting most productive, consider preparing by documenting your seizure history, current symptoms, and questions about your treatment plan. Your personal expertise in managing your condition is a crucial element in your ongoing care. Remember that you are a primary player on your seizure treatment team, and your insights are valuable to your healthcare providers.

April 6, 2025
A MyEpilepsyTeam Member

I have no desire to see any of them.

April 7, 2025
A MyEpilepsyTeam Member

As far as my neurologists go, no! The 1st , I had for 40 yrs., & had seen through my time of going blind in 1998, told me I was on my own, his exact words, when I left the cardiac ward. It even blew his assistants mind.
The other 2, did things I objected too. & some which could be grounds for malpractice. All 3, told me I should be happy bc they kept me controlled. To all 3 I responded the same, "AT WHAT COST" to the rest of my health

April 6, 2025
A MyEpilepsyTeam Member

Considering what a wild roller coaster ride of changes I have had in my epilepsy since I was 5 and told I had outgrown it when I was 12 without any tests to back this up just taken off the meds yeah and the jerk who told me when I had an increase suddenly in grand mal seizures at 45 that they were pseudo and to see a shrink. But the great doctor who put in my VNS and a new combo right after him after a veeg. To the doctor that followed after he moved who wanted to use me as a lab rat for her drug experiments. The 3 great doctors that followed one I'm still using. I have had numerous doctors that moved away for personal reasons. So to have them all in a room together would be interesting.

April 6, 2025
A MyEpilepsyTeam Member

That's your call,

April 7, 2025

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