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are you embarrased to talk about mental health with your support team?
I wanted to highlight this because it seems overlooked by alot of people. How many times have you been told that you are using your epilepsy as an excuse for your melt downs, moodiness, tiredness caused by the effects of a seizure symptom/seizure or side effects of meds? please do not ever give up on seeking mental health support and tests for other conditions as epilepsy hardly ever travels to us alone. 💜
Only a few People told me directly, that I was looking for attention with my Epilepsy/seizures .
Majority of the time , I wasn’t told that. I usually freaked people out when I had my seizures in public or some type of event outside of home. If those people didn’t know me , they usually would keep away from me. A small percentage would come to me and make sure I was ok, after recovery.
I don't know when a seizure has occurred until someone else tells me, so I learned what may cause them through the years & began to motivate myself to do more & based my activities on HOW MUCH/ LONG my body/ mind can handle it!
Once everything was known/ discovered-- I NOW am able to do MANY THINGS alone, (but will keep contact with my partner/ best-friend/ daughters) & will usually make it home safely-- times that I have seizures, my neighbors have contact with family members & I got home safely 🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿
Truthfulness with others is always best. Then they can not only know how you may react but also to react
Kelly08, I'm retired. My problem is with family members. I concluded a long time ago there are people who are just plain ignorant and don't want to change. I'm fine. Thank you for caring
@A MyEpilepsyTeam Member risk assesments at work are important.
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