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coming down to one condition. And only one. Even though I’m not a doctor all my symptoms are matching up to multiple sclerosis. With me having weakness in my legs and well as pain in both of my leg, plus feeling fatigued everyday as well as pain in the hip as well as both of my feet. After reading up on this yesterday it’s scarring the hell out of me. Seizures are mentioned as well. I can’t remember who it was but they told me they were wheelchair-bound due to MS that was on the side as well and… read more

January 3, 2025
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A MyEpilepsyTeam Member

I have worked in research programs. You need to be thoroughly worked up. Many things can cause your symptomology. I pray your Epileptologist can direct you to a group that can do a full work up.

January 3, 2025
A MyEpilepsyTeam Member

Toni, No that hasn’t been done. I’ve gotta go to my gp next Monday I’m going to tell him I want it done. These symptoms aren’t going away. It’s a daily thing 7 days a week now.

January 29, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member All though I feel it’s my decision with doctors when I’m the patient. It should be my choice not theirs. I’m my opinion.

January 28, 2025
A MyEpilepsyTeam Member

Nathan, to be honest with you I wanted to do this before the end of last year but right now I can’t get my folks on the same page with me. I think I need to stay with the same practice. Do the fact I’ve been with him since 1980 I think it was but that really doesn’t matter to me. I really don’t care if I have to form my relationship with a new practice of simple fact is I know this current physician or neurologist I should say doesn’t have my best interest so it should be my decision and not theirs. Nathan the two of us have known one another since like 7th grade. That’s almost 40 yrs.

January 6, 2025 (edited)
A MyEpilepsyTeam Member

Nathan, I’ve already spoken with the classmate I had through school all the way, probably from seventh grade until graduated seven years ago. She’s a nurse now and she’s actually recommended a neurologist through where she works. Currently mind that I have is actually through Riverside. She is actually with Sentara, which is actually also in the Hampton roads area where I am just Sentra only has one location I can go to, but I’ve looked at the reviews about the one she’s actually recommended and his review rating is actually higher than the one I’ve I’m currently going to. But yeah, the all Neuro I started going to an 81. I believe it was the year. I was turning six. I saw him for 27 years until he became on the bigwigs of the decision making for the hospitals until he retired some years ago completely but that neurologist there did everything, including checked on my balance and what not but this one no he doesn’t do that at all neither did my one before that ended up going out due to an illness and probably about three years later afterwards he passed awayThat’s why I ended up with this one. There are younger doctors in the this practice that might be better. I don’t know, but I don’t think I’m willing to take that risk. Try to find another one through this practice. I think I’d rather go with the other practice the one that my school friend is working with instead. With me having us off-balance now and weakness in my legs that’s got a big concern with me right now. It’s only a matter of time. I lose my balance in public and what’s gonna happen to me then I don’t think this current neurologist has any intention of doing anything to make anything better for me. It’s pretty much the way I see it right now.

January 5, 2025

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Kenosha, WI