Thank you for your valued input

@A MyEpilepsyTeam Member , I don’t know what your situation is with insurance coverage but your local Epilepsy Foundation likely offers a variety of resources, like if you can’t afford to get your medication or see your Neurologist or get blood work, etc. They might even have a counselor available cause mine does. A few years ago when I didn’t have any insurance I contacted my local Epilepsy Foundation & they had me do some paperwork & apparently they put me on a program they had, where I paid $25.00 dollars a year & that covered my Depakote & Vimpat & my blood work & my check-ups with my Neurologist. The thing was though, that by being on that program they said I would have to see their Neurologist but they told me that I was lucky because the Neurologist I had just started seeing a few months prior voluneers with our local Epilepsy Foundation, including the other Neurologists in her office & so they told me that I could continue to see my same Neurologist but that if I wanted to get a message to my Neurologist, I had to contact my local Epilepsy Foundation & leave the message with them & have them get the message to my Neurologist. When I began seeing my current Neurologist in November 2019, she wanted to do a 3 to 5 day in hospital video EEG & I didn’t have any insurance & that’s probably how I first learned about the Epilepsy Foundation, even though I’m 46 & have had seizures since the 2nd grade. When completing the EEG, they took me off my Trileptal & put me on Vimpat & told me that at the time there was no generic available & that it could be expensive & that I should look for resources to get help in getting. I had previous experience of not having insurance & I contacted the manufacturer of the Depakote & asked for help & they provided me with free pills & the manufacturer for the Trileptal provided a coupon. So the manufacturer of your medications might offer a Patient Assistance Program that you can apply for. I did that with the Vimpat & was approved & didn’t have to pay for any of it & when I would get low, I called the manufacturer & ordered more. A couple years ago I was approved for disability & so now I have both Medicaid & Medicare/United Healthcare. The insurance covers my medication & I might have small co-pays for like a Neurologist. You can go to www.epilepsy.com & look up your local Epilepsy Foundation & you should find their contact information & you could contact them if you’re needing assistance with anything they likely offer support groups & events if you want to look into that. Your friend in Texas , Becky

Mentioned Users

A MyEpile...

I’m covered by State insurance and also helped by my SSDI/RSDI

I am on my husband's insurance policy and it is good. Luckily, I have never ended up in the hospital, except for my first seizure. My husband's insurance covers all my testing, doctor visits, and medications. I know I am very lucky.

I’m don’t have any. Co pay for my meds. But between my SSDI and State MA ( Medical Assistance ) , help with it.