I used to be embarrassed of me having seizures but am no more. I believe that is because I realized the majority of the time people that special names, talked about often for things that they did in public were people they enjoy to see, admire actions they do and other things of joy. Such as they do for Elton John, Neil Young, Michelangelo, even a very famous American president Franklin D Roosevelt! I'm sure you know respect, admiration, and wish they be able to do what people hthese with Epilepsy did? Who says they don't admire your strength and knowledge to live life with this problem. They may come to you asking for advice on how to handle a problem of life since you have such success dealing with it! Wish you the best take care!!!

I do get a little nervous when I have a seizure in a public area, only when it is an absence seizure. But everyone that has epilepsy needs to remember it is not themselves making a decision. it’s another person’s attitude that has created this uncomfortable feeling. Other people are making the judgment. People are afraid of epilepsy because of the rumors that have been spread around over time. After a person reveals their epilepsy to the public some people will become afraid of it, then decide not to associate with them. That has happened to me in the past, but mutual friends of that person that know me do not change their mind. Most people are good semarations and will help a person having a seizure in a public area. I believe patience is the answer. Learning to live with epilepsy is what people need to do.

yes and if people know you have epilepsy they act like your a freak!...so I have to refrain from telling anyone...I need just wear my medical alert bracelet and do whatever I want to....

Lydia6, it is hard to have a seizure in public especially when you are young. I’ve had quite a few in public places but have learned to use humor and laughter to make myself feel better and break the tension in the air. Often, I’ll say “There I go again, flopping like a fish!” Many will laugh with me as I make my exit. My biggest fear in having a public seizure is someone calling Emergency Services. There is no need unless I don’t come out of it. I have recently purchased a badge with a lanyard which I carry on my purse which tells people how to deal with me while I’m dealing with my episode. I hope 🤞 it helps others around me! 😃

You should not feel embarrassed or feel guilty it is not your fault you had one but you can help prevent it by staying a cool place an not drinking any alcohol which can bring one on