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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Southampton, UK

I had a really bizarre moment this morning. I had just let my dogs out to go to the bathroom and when I got back upstairs to my friends flat I was taking their leads off and felt this really strong deja vu sensation, I carried on taking their leads and harnesses on but it all just felt very strange. I was alone and I remember it very clearly. Just wondered if anyone else has these sensations without a full blown tonic clonic.

July 13, 2024
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A MyEpilepsyTeam Member

Deja Vu for me is a sign telling me that a seizure is going to happen; like an aura.

August 13, 2024
A MyEpilepsyTeam Member

Yes, that’s what I was talking about, too. Look it up if you don’t believe us.

July 27, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member If it's TLE related then they class "Deja Vu" as a focal aware seizure. Yes, it is a warning but technically if its TLE related the warning is also classed as a seizure.

July 27, 2024
A MyEpilepsyTeam Member

Lydia, Yes that can be a symptom It’s actually the beginning if the person experience that . I don’t always get that before a seizure. Sometimes I won’t get anything before the seizure hits me. I have gotten that in the past as well

July 26, 2024 (edited)
A MyEpilepsyTeam Member

Yes, the deja vu sensation you are describing sounds like part of a partial temporal lobe seizure, which used to be called an aura. Back when I had the traumatic brain injury, I used to describe those feelings to my neurologist, but they didn’t know what they were back then, and so I was told that it was imagination (in 1987). Luckily they know more now. I know if it happens to me, I need to get somewhere safe where I can’t hurt myself if it does turn into something bigger because I’m prone to falling.

July 26, 2024

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