I think these things are very interesting. Where I’m from, doctors only really focus on the types of epilepsy that leaves you unconscious like grand mals or absent seizures. They don’t really bother with the other types, but I definitely experience a lot of temporal lope epilepsy symptoms and learning to recognise them. I feel these sensations often with little sleep, during stressful times or recovering from a tonic-clonic. I just always thought it was from exhaustion, but learnt they are actually symptoms.

I have deja vu and presque vu. I think my presque vu is worse than my deja vu.

If I had a seizure cluster, I can be having a conversation but will forget the name of things that should be on the tip of the tongue.

Now and then, my opinion

I get all three, even alone without leading to a more intense seizure. I have the presque vu all the time, when I can’t think of words or what I was just going to say. The deja vu is next, and that’s when I start to get worried. Then, finally the jamais vu feels like I’m walking in a dream that I’ve dreamt before, but can’t remember beforehand. That’s when I try to hold onto my reality for dear life, but often go into a full TL or grand mal seizure. At least that’s usually the order for me, if I’m lucky enough to have them before the grand mal.

I wish you a very good holiday, and best wishes for it to be seizure free… K

I've been in the same boat as you @A MyEpilepsyTeam Member. Just thought it was stress related. It wasn't until my doctor was imploring me to research, that I realized that it was focal aware seizures.

I thought I had temporal lobe epilepsy, but it seems most likely that I have insular opercular epilepsy. It just mimics temporal and frontal lobe epilepsy. Going to Mayo Clinic to confirm.

Mentioned Users

A MyEpile...