My only suggestion is to always have a friend or family member join you and any person recommending treatment options to you.

@A MyEpilepsyTeam Member It is important for the new doctor to know what you have experienced in the past and what you are currently experiencing. As an example, I moved from one state to another. Therefore, I had my records from that state transferred to my new epilepsy specialist by copying them from my previous doctors.

I was recommended to have a new Video EEG by my epilepsy specialist due to the situation I was in. As a result of that test, we were able to identify more activity, which opened new doors for my care and we discussed various options.

Transferring medical records from one doctor to another isn't a bad thing. My point is that, while these records are only copied, sharing them from one doctor to another can actually be very useful as the new doctor can see what medication was used before so it won't be used again in the future. Side effects a patient has had with medication are very important to know, changes in seizure flow, the type of seizure change is also an important note to be aware of. I am just giving examples, as I remember discussing the above notes with previous epilepsy specialists over the years because they were valuable to them.

I was a little nervous moving from one state to another, changing doctors on top of that. But after meeting the new doctor and we got the speaking of my options it gave me new light on my care which gave me hope. I do wish you well with the up and coming visit!

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A MyEpile...

As much as I felt cared for by my epileptologist but not my neurologist, I think I'd keep the records at home.

They want me to go to the in patient monitoring unit before my appointment. I think this a great proactive idea. I’ve been to one before. Should I share those records? Im not sure I want the new doc to be influenced by the old docs notes, does that make sense?

It's dif per person, I had my past doc i seen, I considered her a doc but as for a neurologist or epileptologist etc , I think that is what she is, call her doc, and figure she is qualified to see me, otherwise she wouldn't, I'll miss her, but that is my opinion here