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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How can I find an epileptic who has it just like me? Living with side effects I must face since first starting meds 35 years ago.

A MyEpilepsyTeam Member asked a question 💭
Stockton, CA

The side effects I’ve faced since the day I started taking medicine. I have experienced a very bad memory since then. I am also sexually disabled. The very BEST I’ve felt in the past 30 years was 2 weeks after brain surgery, when I had gone a total of 4 straight weeks taking no medicine at all. But I had to start up again, that’s why the next 3 years were so tough as I cut down on my daily dosage.

July 1, 2024
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A MyEpilepsyTeam Member

Maybe start a search on here and see if there’s anyone near your town, city or rural area . Just start in the menu and check click on “ meeting others “ .

July 1, 2024
A MyEpilepsyTeam Member

I have seizures had them since 2015. I ended up a short-term after a car accident and then when I got covered I ended up with more short-term. Hugs

July 5, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I’ve had seizures for 32 years and had memory problems since the day they started

July 1, 2024
A MyEpilepsyTeam Member

Memory issues are tough, Sneak78. Switched to XCopri, a year ago, from Clbobazam. I just tell myself that the goal is to have as few seizures as possible. I have more alertness on XCopri. Memory is not the best, either med. Stay pos.

July 1, 2024

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