Thank you. This is great info. Thank you. 🙏

@A MyEpilepsyTeam Member , If you’re talking about looking into getting assistance from your local Epilepsy Foundation to help pay for your meds, check-ups with a Neurologist & blood work, this is what my local Epilepsy Foundation did: In November 2019 I began seeing a new Neurologist & I didn’t have any insurance & after an in hospital EEG, my Neurologist twitched me from my Trileptal to Vimpat & at the time there wasn’t a generic available & so I contacted the manufacturer of Vimpat & got approved for their Patient Assistance Program. I contacted my local Epilepsy Foundation & asked if there was any way they could help me get my meds. I had a disability attorney & was still early in trying to get my disability & that was approved in 2022. But my local Epilepsy Foundation apparently put me on a program that they had where I paid $25.00 dollars a year & I think that included a check-up with “their” Neurological but luckily it was my regular Neurologist. I was told that normally a person must see our Epilepsy Foundation’s Neurologist but since my Neurologist’s office already volunteers with them, I was able to continue seeing my regular Neurologist. The program I was on covered blood work & meds & maybe phone check-ups or maybe a $25.00 charge in person. Back when I first started using it, Covid had started & was bad & so my Neurologist or a Nurse was only doing phone check-ups, but they wouldn’t allow me to use my Neurologist’s office’s Patient Portal. Any message that I had for my Neurologist, I had to contact my local Epilepsy Foundation & give them the message & ask that they give my Neurologist or their office the message. So, the Neurologist with your local Epilepsy Foundation will do whatever they feel is necessary to try & help you. Just make sure you give them all your information, like meds you’re currently taking & ones you’ve taken in the past, etc. Ask your local Epilepsy Foundation about any questions you have. You likely would have to fill out some paperwork to see if you qualify for their assistance. Hope this helps some. Your friend in Texas, Becky

Mentioned Users

A MyEpile...

That depends on your new neurologist. She/He may not trust the tests results they have received. And because the test was some time ago and they want a current test run on you.

It's always recommended that if any changes do need to be made to your meds that you leave it up to the Neurologist or the gp may do it.