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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hey everyone! If you have a VNS- did you find that it took some time to get the settings right? If so how long?

A MyEpilepsyTeam Member asked a question 💭
Brentwood, CA
February 6, 2024
 · 
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member my next step will be a intracranial grid electrode veeg and if they are able to find the spot they will be able to do a resection. I am fairly nervous about this procedure and still need more time to decide when I want to do this.

February 8, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member yea I’m going to get it taken out eventually

February 7, 2024
A MyEpilepsyTeam Member

Yes. Infact my Dr. Had it on the highest setting. It still didn’t work well with me.

February 8, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I have an Neurostimulator (RNS) now and it works better so if the doctors ever bring that up I can tell you about it.

February 7, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I got my VNS taken back out. It showed no improvements.

February 7, 2024

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