Top 10 search results for "ways to care for yourself as an epilepsy caregiver" in Q&A. To see all results and access other features, sign up for free.

Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.

I was diagnosed with complex partial seizures in 2005. It was with an EEG test. I have had a couple since then that didn't catch any seizure activity. was told by the head of Neurology that EEG's weren't really a good tool and were archaic. I moved to another state, had another EEG which showed nothing. And now they want me to have another one to catch the seizure I had earlier this year and as lately as Thanksgiving. If they don't capture anything, they will take me off my medications. So… read more

If there are, where do I look and how do I connect? Thank you, parent of a fourteen year old daughter with Lennox Gastaut Syndrome, ADHD, autism and more.

Have any of you faced the challenge of losing your sole caregiver and then having to live alone? I am not there yet but I fear that inrvitibly will happen to me. As any epileptic I am trying to mentally prepare myself for a harsh reality that I am to face at some point. Any insight or thoughts on how you prevailed from dealing with grief to learning to live alone?

I think my husband needs the support of others like him that go through seeing a loved one go through the pain of epilepsy. If anyone knows one send it. I might be able to get him to look at it.

I received a message from my neurologist saying I have developed Mycrocitic Anemia & I should see my primary doc. to get it checked out and that she might have to lower the dosages of 1 of my meds. Does anyone else have mycrocitic anemia or any sort of anemia? How has it effected you or your meds?

I want him to see what others go through caring for people with epilepsy. He is mad because I told him about what I wrote about him and how it helps to know you are not alone in the struggle in epilepsy. He won't even think about it. I am the one with the problem. Not him he says. My oldest son said I should be grateful. He said if I left my husband, I cannot stay at him. He would be me ina home right away. That hurts. I have been crying for a few days. My other son is a recovering alcoholic and… read more

Can someone please tell me how to cope with this. I’m beginning to think i can’t anymore. That she will never improve and possible die. It’s been 4 years and they keep coming every month or so. Full tonic clonic. Why can’t I be strong like other parents. Any advice please. Encouraging stories, anything

My three year old had very good speech when this started out of the blue 4 months ago and now she is very hard to understand at times and her sentences are kind of broken up. Is this normal? What could be the reason for it? She has only had a few very short grand mal seizures, her main type is drop seizures (atonic) and head drops which are now under control with her medicine. This is bothering me so much because I've read of people losing their ability to speak with epilepsy and I'm not… read more