Care Givers Feels They Have No Way To Help Us What Should We Suggest? | MyEpilepsyTeam

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Care Givers Feels They Have No Way To Help Us What Should We Suggest?
A MyEpilepsyTeam Member asked a question 💭
posted October 15, 2022
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A MyEpilepsyTeam Member

Communication and appreciation is what I would say to the relationship of a person with epilepsy and their "caregiver"(friend).
Epilepsy effects not only the one who has it... but everyone that comes into that person's life.
Our "caregiver" is someone to support and help us through life. If we don't let them know what we need or what we're feeling... they can't help us. We need to make sure we thank them for what they do... often! But just like any relationship... it has two sides, and the "caregiver" needs to be open too. They need to let the "cared for" know how we can help them help us more.
Relationships take effort! This is a relationship that could help you be more relaxed and maybe even help you figure out your "way out!"
How to get a grasp on your life with the cards you've been delt, and maybe feel more confident to just live life!
Blessings to all the friends and family who watch over you! That take the time to log information. Take us to appointments. Watch us in pain during a seizure and in recovery... and then they watch us be depressed!
How depressed do you think they get huh?... and they didn't have a seizure... they watch them.
Epilepsy WILL effect you if it comes into your life! It is you who decides whether that effect is going to be good or bad?

YOUR CHOICE

Take care on your journey.
Take care.😊

posted October 17, 2022
A MyEpilepsyTeam Member

I agree with what you said Randy and how to handle it thing is that all caregivers know exactly what they’re doing and how they’re taking care of it especially if they’re a kid their parents should be doing that but if they’re older then they should know it that’s why I said keep a log log is great for that because then you can write medication you’ve been one I keep Elizabeth plus all you have to do is go to the pharmacy that you’ve been at and asked for a list for your medication that you’ve taken and will print out everything you’ve been on and everything especially if you take them to the same one all the time he will get the request the dosages and how much milligrams and everything I will do the same thing that’s the most important thing for everyone of us that’s why I keep a list to keep all of my scripts when I receive my medications I keep a copy of all my medication Scripps latest and some of the old ones so I always have themThat’s all I have for today and I hope it helps you have a good afternoon and enjoy life is always gonna be worth living.

posted October 17, 2022
A MyEpilepsyTeam Member

First thing they need to do, is learn Epilepsy/Seizure First Aide.
Next thing is learning to understand the different seizures types and the different forms of Epilepsy. What ever medication you or someone is taking , they need to research the side effects. Then look for then side effects in the person then ask if the client notices anything.

Those are just a few of the many things the caregiver needs to do.

posted October 16, 2022
A MyEpilepsyTeam Member

No worries everyone that's communicating on our level and it's GREAT! Have a wonderful day 🎉

posted October 28, 2022
A MyEpilepsyTeam Member

Sorry for the long delay in responding! I had a bad period of depression and something else.
The first question you ask is: Why? And what are the details?

After all of that, get a new doctor.

posted October 28, 2022

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