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Xcopri And Side Effects
A MyEpilepsyTeam Member asked a question 💭

I finally got my license back a year ago after achieving seizure control (yay) with Lamictal and Topamax, but my doctor thinks I'm having some undetected sleep activity and the Topamax causes severe anxiety for me, so she wants to switch to Xcopri. I started for a few days, but my vision was really weird, almost hallucinating, and I need to drive my kids around. I decided to stop until my next visit (I have sample packs). Also dreading the sleepiness, although I've found it got better after… read more

posted April 19, 2023
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A MyEpilepsyTeam Member

I'm up to 50 mg and my doctor wants to get me to 100 mg. Really tired is the only side effect I've had, but it's better if I fight through it rather than sleep. Seems like the tiredness gets a lot better for me after a few days at each level since it's a slow titration. I watched some YouTube videos and doctors suggested coming down on other meds while getting on it so I asked my doctor to do this. I'm now completely off Topamax, and am going to lower my Lamictal when I get to 100 mg. So far no seizures. I've also been sensitive to medications causing mood changes, anger, depression, etc., and this doesn't seem to have any of that. It's expensive but you can get it from the company free or cheap.

posted May 22, 2023
A MyEpilepsyTeam Member

XCopri made me feel nauseous and exhausted at all times. I could’ve slept every minute if the day and it still wouldn’t help. I lived on pepto and ibuprofen😅 i had to get off xCopri as it wasn’t helping me anyways

posted April 21, 2023
A MyEpilepsyTeam Member

I just started taking a Xcopri and would also like to know the side effects. I was taking 100mg and I felt short of breath. The doctor lowered my dose but I might need to go back to 100mg.

posted April 19, 2023 (edited)

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